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Blog Post | Personal Stories, Science + Research

My Gene Therapy Journey: The Curran Family

Conner Curran Conner Curran made history when he became the first child to receive gene therapy treatment for Duchenne muscular dystrophy (DMD) in a 2018 Pfizer clinical trial. Clinical trials…

Tags: Clinical Trials, Drug Development, Gene Therapy, My Gene Therapy Journey, Parenting


Blog Post | Health, Science + Research

Clinical Research Alert: Study of Auto Injector Device for People with SMA

Researchers at Interface Analysis Associates (IIA) (on behalf of Biohaven) are seeking individuals living with spinal muscular atrophy (SMA) to participate in a study to assess the experience of using an…

Tags: Research Study, Research Study Alert


Blog Post | Finding a Diagnosis, Health, Science + Research

Simply Stated: Revisiting Muscular Dystrophy

The muscular dystrophies are a group of diseases that cause progressive muscle weakness (myopathy) and loss of muscle mass (atrophy). These conditions can lead to varying levels of disability in…

Tags: Simply Stated


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: Embracing Disability and Advocating for an Access-ABLE College

Scott Patterson is from Pittsburgh, Pennsylvania, and lives with facioscapulohumeral muscular dystrophy (FSHD). He is currently studying Biology at the University of Notre Dame. And a fun fact about him is…

Tags: Ambassador Guest Blog, Ambassadors, College, Community, Education, Mental Health, Relationships, Young Adults


Blog Post | Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories

MDA National Ambassador Blog- Insights by Ira: Observations of Love with a Neuromuscular Condition

Do you like musicals? Personally, I adore musicals and find it to be one of the purest, most enjoyable medium of entertainment. My all-time favorite musical is Rogers and Hammerstein’s…

Tags: Ambassadors, Insights by Ira, Ira, Mental Health, Relationships, Young Adults


Blog Post | Health, Lifestyle

Adaptive Exercises for People with Neuromuscular Diseases

Understand the variety of adaptive exercises available to choose a physical activity that works for your body and mobility.

Tags: Featured Content, Staying Active


Blog Post | Advocacy, Get Involved, Inclusion, Independence, News, Personal Stories

MDA Ambassador Guest Blog: My Experience at the 14th Annual Disability Justice Seminar

Sumukha Terakanambi is 25 years old and lives in Lakeville, Minnesota. He was diagnosed with Duchenne muscular dystrophy (DMD) at the age of four. Sumukha is a policy consultant with…

Tags: Ambassador Guest Blog, Ambassadors, Community, Young Adults


Featured Article | Lifestyle

Avoid Online Scams Targeting People with Disabilities

Older adults and people living with health conditions and disabilities should know these tips to avoid online scams and cybercrime.

Tags: Featured Content, Finance, Technology, Web Exclusive


Blog Post | Lifestyle, Personal Stories

MIT Student is a Shining Star in the Universe

Ben Lou Ben Lou is breaking boundaries in quantum physics, mathematics, and philosophy – and in the way that the world views people living with disabilities. The rising senior at…

Tags: College, Community, Education


Featured Article | Health, Lifestyle

6 Tips for Living Well as a Senior with Neuromuscular Disease

Strategies for seniors with neuromuscular diseases to manage a progressive disease while dealing with common challenges that come with aging.

Tags: Caregiving, Community, Featured Content, Finance, Insurance, MDA Resource Center, Mental Health, Personal Care Attendants, Staying Active, Volunteers