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Blog Post | Inclusion, Lifestyle, News

Inclusion Outshines Ableism on the Big Stage

Most Likely Not To… will debut on Rare Disease Day, February 29, 2024. The disability community is making history this year with a first-of-its-kind musical production created from start to…

Tags: Accessible Air Travel, Community, Travel


Blog Post | Health, Science + Research

Simply Stated: Muscle Biopsy

A muscle biopsy is a surgical procedure in which one or more small pieces of muscle tissue are removed for microscopic examination and biochemical or genetic testing. The procedure, sometimes…

Tags: Featured Content, Genetic Testing, Healthcare, Simply Stated


Blog Post | Advocacy, Finding a Diagnosis, Health, Science + Research

All 50 States and DC Implement Spinal Muscular Atrophy Newborn Screening

2024 has already brought several exciting developments throughout MDA’s advocacy priorities and policy areas, but one of the biggest victories for the MDA community so far this year is the…

Tags: Advocacy Updates, Newborn Screening


Blog Post | Advocacy, Get Involved, Independence, Personal Stories

MDA Guest Ambassador Blog: How MDA Summer Camp Shaped Me

Juliette is 17 years old and lives in Florida. She is a senior in high school and will be attending FAU next fall to begin her career in social work.…

Tags: Ambassador Guest Blog, College, Community, Relationships, Staying Active, Young Adults


Blog Post | Health, Science + Research

Simply Stated: Updates in LAMA2 Muscular Dystrophy

LAMA2-related muscular dystrophy (LAMA2-RD) is a rare neuromuscular condition characterized by proximal (close to the body center), axial (head and trunk), and facial weakness, elevated creatine kinase (CK), central and…

Tags: Clinical Trials, Healthcare, Simply Stated


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

Episode 38: Love Made Simple with Alexa and Jacqueline Child of DateAbility

In this Quest Podcast episode, we chat with the founders of DateAbility, a dating application geared towards individuals with disabilities and chronic illnesses. Alexa and Jacqueline Child have devoted their…

Tags: Relationships


Featured Article | Advocacy, Inclusion

Disability Benefits and the Marriage Penalty

Getting married may mean losing vital disability benefits. Here’s what’s being done to erase the marriage penalty.

Tags: Featured Content, Finance, Relationships


Featured Article | Inclusion, Independence

Raising Resilient Kids with Neuromuscular Diseases

People living with neuromuscular diseases share their upbringing and how their parents instilled resilience from a young age.

Tags: Featured Content, MDA Advocacy, MDA Ambassadors, MDA Let's Play, MDA Mentorship, MDA Resource Center, MDA Summer Camp, Mental Health, Parenting, Young Adults


Featured Article | Personal Stories

Former MDA Summer Campers Reunite After 14 Years

Former MDA Summer Campers get together after 14 years to reunite and continue their lasting connections.

Tags: Featured Content, Lasting Impression, Summer Camp


Featured Article | Inclusion, Lifestyle

ReelAbilities Co-Founder Talks Representation on the Big Screen

ReelAbilities Film Festival co-founder Isaac Zablocki talks about disability representation in the entertainment industry.

Tags: A Look Inside, Community, Featured Content