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Blog Post | Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: How I Stay Active and Involved in My Community

Sundae Duyssen is 18 years old and lives in Western New York with her family, on their 800 acre cash crop farm.  She was diagnosed with congenital muscular dystrophy around…

Tags: Ambassadors, Community, Staying Active


Blog Post | Advocacy, Independence

Neuromuscular Advocacy Collaborative at the 2025 MDA Clinical & Scientific Conference: Q&A with Paul Melmeyer

Paul Melmeyer, MDA’s Executive Vice President, Public Policy & Advocacy The 2025 MDA Clinical & Scientific Conference will be held March 16-19, 2025, at the Hilton Anatole in Dallas, Texas.…

Tags: Advocacy, MDA Clinical and Scientific Conference


Blog Post | Health, Lifestyle, Tools& Resources

Managing Medical Trauma

Adults and children living with neuromuscular disease can experience medical trauma, but there are ways to cope.

Tags: Community, Featured Content, Parenting, Resources


Blog Post | Advocacy, Independence, Lifestyle, Personal Stories

Letters from Leah: “Fin” (A Farewell Note)

Dear Friends, What an honor it has been to be one of MDA’s National Ambassadors! I will never forget all the amazing connections and friendships I have made along this…

Tags: Ambassadors, Leah, Letters From Leah


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

Ambassador Guest Blog: Cooking Tips & Tricks (Just in Time for the Holidays)

Barbara Ochoa is an animal lover and skilled home chef who lives in California. She loves to spend time with her husband and adult children on their farm and stay…

Tags: Ambassador Guest Blog, Ambassadors, Community, Relationships, Young Adults


Blog Post | Independence, Lifestyle, Science + Research

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Ambassadors, Drug Development, Healthcare, Innovation, Ira, Mental Health, Research, Research Advances


Blog Post | Independence, Lifestyle

Get Cozy with Accessibility and Independence This Winter

With colder temperatures, variable weather conditions for travel, and shorter hours of daylight each day, winter often brings with it the season of spending more time staying inside and cozying…

Tags: Community, Resources


Blog Post | Advocacy, Independence, News

MDA CEO and President Dr. Wood Reflects on 2024: A Year of Milestones and Momentum

Hello MDA Families and Friends, As we approach the close of 2024, it’s a moment for all of us at the Muscular Dystrophy Association (MDA) to reflect on the profound…

Tags: Advocacy Updates, Ambassadors, Community, Drug Development, Fundraising, Gene Therapy, Healthcare, Innovation, MDA Clinical and Scientific Conference, MDA College Scholarships, Research Advances, Summer Camp


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

Episode 47- Wrapping up 2024 with Leah and Ira

In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Leah Z., and Ira Walker. Leah is a dedicated advocate  finishing her second year as a National…

Tags: Ambassadors, Community, MDA Ambassador Program, MDA Ambassadors, Relationships, Young Adults


Blog Post | Advocacy, News

A Year of Progress: Looking Back on the 2024 Changes in Air Travel Accessibility

As 2024 draws to a close, it is worth reflecting on the progress MDA and the disability community achieved this year towards air travel accessibility. From the inclusion of important…

Tags: Accessible Air Travel, Advocacy Updates, Travel