Advocacy

Through advocacy, we make the MDA community’s voice heard and promote the interests of kids and adults living with neuromuscular diseases.

A man with a brown hair and a brown beard holds a microphone on stage at a conference
Blog Post

Neuromuscular Advocacy Collaborative at the 2025 MDA Clinical & Scientific Conference: Q&A with Paul Melmeyer

By MDA Staff | December 18, 2024
A young woman in a wheelchair poses with her parents in front of the Capitol
Blog Post

Letters from Leah: “Fin” (A Farewell Note)

By Leah Z. | December 12, 2024
A young boy in a batman t shirt holds up a sign that says HOPE in front of a red curtain
Blog Post

MDA CEO and President Dr. Wood Reflects on 2024: A Year of Milestones and Momentum

By Donald S. Wood, Ph.D., President and CEO, Muscular Dystrophy Association | December 5, 2024
Blog Post

Episode 47- Wrapping up 2024 with Leah and Ira

By MDA Staff | December 5, 2024
a white airplane flying in sky above the clouds
Blog Post

A Year of Progress: Looking Back on the 2024 Changes in Air Travel Accessibility

By Shannon Wood | December 4, 2024
Gene therapy of the DNA cell. Research changes in the genome of a living organism. Low-poly design of a human hand with a syringe and a spiral-shaped chromosome. Blue background.
Blog Post

Simply Stated: Therapeutic Strategies to Treat DMD

By Sujatha Gurunathan | November 26, 2024
Sory is pictured with her cousin, Leslie
Blog Post

MDA Ambassador Guest Blog: Embracing Resilience and Navigating Life’s Unexpected Turns

By Sorayda Rivera | November 25, 2024
2024 Clinical and Scientific Conference - Mon 03042024
Blog Post

A Q&A Look into the Planning and Upcoming Topics of the 2025 MDA Clinical & Scientific Conference

By MDA Staff | November 6, 2024
A social security card and pile of money.
Blog Post

Five Things You Should Know About the SSA’s Changes to Supplemental Security Income

By Shannon Wood | November 1, 2024
Blog Post

Episode 45- Making Space and Creating Pathways with Keely Cat-Wells

By MDA Staff | October 25, 2024