Amy Bernstein

John Crowly and Sharon Hesterlee having a sit-down conversation on stage at the 2026 MDA Clinical & Scientific Conference
Blog Post

2026 MDA Clinical & Scientific Conference Opening Highlights the Power of Collaboration

By Amy Bernstein | March 10, 2026
Blog Post

MDA Awards Honors Those Driving Progress in Neuromuscular Research and Care

By Amy Bernstein | March 6, 2026
DNA molecule research study concept. The doctor makes manipulations with the DNA molecule on a blurred background.
Blog Post

Research Network Supports Limb-Girdle Muscular Dystrophy Treatment Development

By Amy Bernstein | March 4, 2026
DNA Helix analysis visualization data, genome sequence ui screen, futuristic genetic engineering lab infographic interface, 3D biotechnology scan report dashboard, medical science technology backgound
Featured Article

What Is a VUS? Variants of Unknown Significance in Genetic Testing and Why They Matter

By Amy Bernstein | February 23, 2026
A compass, with the needle pointing north, rests on a rocky shore.
Featured Article

The New Diagnostic Journey: Advances in Genetic Testing Speed Rare Disease Diagnosis

By Amy Bernstein | February 23, 2026
Research Lab Scientist Using Computer. Medical Science
Blog Post

Everything You Need to Know About Clinical Trials for Neuromuscular Diseases

By Amy Bernstein | December 23, 2025
Illustration of a DNA double helix on a dark blue background
Featured Article

Say Yes to Gene Therapy? Factors to Consider When Gene Therapy Is an Option

By Amy Bernstein | November 14, 2025
Arturito Estopinan, a teen who received a new therapy for the rare TK2d disease, seated in a wheelchair between his parents, Olga and Art.
Blog Post

How Expanded Access and Compassionate Use Broaden Access to Investigational Therapies

By Amy Bernstein | November 4, 2025
Illustration showing the figures of people in various colors and designs
Featured Article

MDA Community Programs Support and Empower

By Amy Bernstein | August 19, 2025
Tamara Blackwell, in a wheelchair, and her two travel companions pose with Mt. Rushmore in the background.
Blog Post

MDA Ambassadors Share Tips for Flying with Power Wheelchairs and Medical Equipment

By Amy Bernstein | June 26, 2025