News

Read the latest news about issues affecting the neuromuscular disease community.

Three people on mobility scooters chatting in a city plaza on a rainy day.
Featured Article

MDA’s DME Grant Program Helps Get Essential Equipment to Live Well

By Amy Bernstein | May 26, 2026
John Crowly stands at a podium in the spotlight in a dark auditorium. Signage on the podium and behind him says MDA Clinical and Scientific Conference.
Blog Post

Pompe Disease and the Real Story Behind Dr. Stonehill, John Crowley, and ‘Extraordinary Measures’

By Amy Bernstein (Updated) | April 13, 2026
John Crowly and Sharon Hesterlee having a sit-down conversation on stage at the 2026 MDA Clinical & Scientific Conference
Blog Post

2026 MDA Clinical & Scientific Conference Opening Highlights the Power of Collaboration

By Amy Bernstein | March 10, 2026
Blog Post

MDA Awards Honors Those Driving Progress in Neuromuscular Research and Care

By Amy Bernstein | March 6, 2026
DNA molecule research study concept. The doctor makes manipulations with the DNA molecule on a blurred background.
Blog Post

Research Network Supports Limb-Girdle Muscular Dystrophy Treatment Development

By Amy Bernstein | March 4, 2026
Book with title The Americans with Disabilities Act (ADA).
Blog Post

Recent Updates with Section 504

By Shannon Wood and Joel Cartner | February 11, 2026
Blog Post

Our 2026 Advocacy Agenda

By Mark Fisher | February 5, 2026
MDA’s 2026 National Ambassador Lily Sander
Blog Post

What’s Ahead for Your 2026 National Ambassador

By Rebecca Hume | January 23, 2026
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Blog Post

In Case You Missed It…

By MDA Staff | January 8, 2026
2025 MDA Clinical & Scientific Conference - NMAC Meeting - TS
Blog Post

Collective Advocacy at the MDA Clinical & Scientific Conference Propels Hope and Possibility

By Paul Melmeyer | January 8, 2026