Lifestyle

Find stories and resources to support your lifestyle while living with a neuromuscular disease.

John Crowly stands at a podium in the spotlight in a dark auditorium. Signage on the podium and behind him says MDA Clinical and Scientific Conference.
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Pompe Disease and the Real Story Behind Dr. Stonehill, John Crowley, and ‘Extraordinary Measures’

By Updated by Amy Bernstein | April 13, 2026
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MDA Ambassador Guest Blog: My Pompe Journey

By Kathryn Arvidson | April 10, 2026
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Quest Podcast: From Roadmap to Emmy: Samuel and Dan Habib on Filmmaking, Family, and Disability

By MDA Staff | April 9, 2026
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In Case You Missed It…

By MDA Staff | April 8, 2026
Happy volunteer in wheelchair taking notes while working at donation center.
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Ambassador Guest Blog: How I Use My Voice by Volunteering – and Why You Should Too

By K.L. Cleeton | April 6, 2026
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MDA Ambassador Guest Blog: Rurally Complicated

By Jenna Ryerson | April 2, 2026
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Quest Podcast: Pizazz, Purpose, and Periodic Paralysis: How Cienna Ditri Turns Lived Experience into Advocacy

By MDA Staff | March 26, 2026
Wildland fire fighter Tyler Long stands in front of a smoking forest fire with a chainsaw and freshly cut tree
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Wildland Fire Fighter Refuses to Allow Diagnosis to Define His Life

By Rebecca Hume | March 24, 2026
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MDA Ambassador Guest Blog: Navigating a Busy Life with a Feeding Tube

By Richard Farrell Jr. | March 16, 2026
wooden blocks spell out the word content with word bubbles above that say news and stories and photos and blog
Blog Post

In Case You Missed It…

By Rebecca Hume | March 8, 2026