Personal Stories

Read personal stories about people living and thriving with neuromuscular diseases.

A young woman stands at a podium on stage at a conference
Blog Post

Access, Impact, and Connection at the MDA Clinical & Scientific Conference

By Rebecca Hume | July 30, 2026
Cassidy and her two best friends, Bianca and Desirae at the Citgo/MDA Driving for a Cure Gala
Blog Post

MDA Ambassador Guest Blog: The Power of Lasting Friendships

By Cassidy Nilles | July 27, 2026
Blog Post

MDA Ambassador Guest Blog: What the Disability Movement Means to Me

By Callie Hall | July 21, 2026
Woman smiling beside a home ventilator in a cozy room with flowers and houseplants.
Blog Post

Respiratory Support Makes a Big Difference: Community Perspectives on Using a Ventilator

By Amy Bernstein | July 17, 2026
Zach with the trauma team at the hospital after his recovery
Blog Post

How One Man with DMD is Using His Medical Emergency Experience to Educate Others

By Rebecca Hume | July 15, 2026
wooden blocks spell out the word content with word bubbles above that say news and stories and photos and blog
Blog Post

In Case You Missed It…

By MDA Staff | July 8, 2026
John at Disney Boardwalk in Orlando, FL attending an annual conference for SMA.
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MDA Ambassador Guest Blog: The Part I Let Belong: Learning to Embrace My Disability Identity

By John Scurto | July 6, 2026
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Life with Lily: My Favorite Accessible Fashion & Beauty Tips

By Lily Sander | June 23, 2026
RiseFest, one of the largest Christian music festivals in the Midwest
Blog Post

MDA Ambassador Guest Blog: Lessons in Life and Fatherhood

By Rob Roozeboom | June 18, 2026
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MDA Ambassador Guest Blog: Strong Enough to Carry Grief AND Gratitude with FSHD

By Skye Anderson | June 15, 2026