Featured Content

Savannah Jordan and her partner, embracing in a sunlit field, both have their hands lovingly around her pregnant belly.
Featured Article

Considerations and Tips to Plan for Pregnancy with a Neuromuscular Disease

By Maggie Callahan | May 26, 2026
Matt Curcio and his family pose outdoors by a fence, with the children holding sunflowers and Matt seated on a mobility scooter.
Featured Article

Foster Care, Adoption, and Surrogacy Considerations for Parents with Neuromuscular Diseases

By Rene Ryan | May 26, 2026
Detailed 3D illustration of a human heart with visible arteries and veins against a dark background.
Featured Article

New Cardiac Insights Show How Neuromuscular Diseases Affect the Heart

By Chris Anselmo | May 26, 2026
Bright color-block illustration of objects and people related to education and disabilities, including a lightbulb, pencil, eye, puzzle piece, and girl in a wheelchair.
Featured Article

Guide to Navigating IEPs and 504 Plans for Kids with Neuromuscular Diseases

By Joanna Buoniconti | May 26, 2026
Bluebird perched on a flowering tree branch against a blurred green background.
Blog Post

Accessible Birding: An Inclusive Window to Nature and Wildlife

By Barbara and Jim Twardowski, RN | May 26, 2026
Closeup of Fiona Cauley sitting in her wheelchair
Blog Post

Comedian Fiona Cauley Shares Humor While Raising Disability Awareness

By Barbara and Jim Twardowski, RN | May 1, 2026
Pharmaceutical research and medical concepts
Blog Post

Beyond Approval: Why Drug Development Doesn’t End at FDA Sign-Off

By Megan Kramer-Salvitti | April 20, 2026
John Crowly stands at a podium in the spotlight in a dark auditorium. Signage on the podium and behind him says MDA Clinical and Scientific Conference.
Blog Post

Pompe Disease and the Real Story Behind Dr. Stonehill, John Crowley, and ‘Extraordinary Measures’

By Amy Bernstein (Updated) | April 13, 2026
Man with disability in yellow vest, engineer in a factory unit checking a work process. inclusion and diversity concepts.
Blog Post

How to Make Vocational Training Affordable

By Amy Bernstein | March 20, 2026
John Crowly and Sharon Hesterlee having a sit-down conversation on stage at the 2026 MDA Clinical & Scientific Conference
Blog Post

2026 MDA Clinical & Scientific Conference Opening Highlights the Power of Collaboration

By Amy Bernstein | March 10, 2026