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Access to Neuromuscular Disease Care for Black People and People of Color

By Myrna Traylor | February 1, 2023
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Blog Post

To Tilt or Not to Tilt: The Benefits of Tilt in Space Wheelchairs

By Joanna Buoniconti (Updated Version) | January 24, 2023
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Blog Post

Navigating the Long Journey to a Rare Disease Diagnosis

By Shaila Wunderlich | January 18, 2023
A boy with light skin and dark hair and swim goggles perched on his forehead looks at the camera with a large, open-mouthed smile and his hands up in the air. He wears a blue long-sleeve rash guard and life vest and sits in a beach wheelchair with large, yellow inflated wheels designed to roll on sand.
Blog Post

International Day of Persons with Disabilities: The State of Neuromuscular Disease Advocacy Around the World

By Larry Luxner | December 1, 2022
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Blog Post

What You Should Know About Target Health Numbers

By Cheryl Alkon | November 25, 2022
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Featured Article

Holiday Cheer: Smart Tips to Manage the Stress of the Season

By Barbara and Jim Twardowski, RN | November 18, 2022
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Featured Article

3 Steps to Find Reliable Information on Neuromuscular Disease Research

By Amy Bernstein | November 18, 2022
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Featured Article

How to Speak Up for Your Healthcare Needs in Hospitals and Doctors’ Offices

By Donna Albrecht | November 18, 2022
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Featured Article

The Best Way to Prepare People With Disabilities and Their Communities for Natural Disasters

By Myrna Traylor | November 18, 2022
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How Protective and Advocacy Organizations Help People with Disabilities

By Susan Johnston Taylor | November 10, 2022