Quest Podcast

Quest podcast, proudly presented by the Muscular Dystrophy Association, brings thoughtful conversation to the neuromuscular disease community and beyond about issues affecting individuals living with disabilities and those who love them. Our mission is to bring about more awareness, to educate and inform, to demystify and inspire, to contribute to progress, and…at times…to entertain. Thank you for listening!

Mindy Henderson

Mindy Henderson

About Our Host

Mindy Henderson, Director of Quest Media and host of the Quest podcast, was diagnosed with spinal muscular atrophy, type 2 when she was 15 months old. Mindy is also a motivational speaker and author, and just released her first book, The Truth About Things That Suck.

Episode 19 – Lights, Camera, Action – and Accessibility: Part 2

James Ian is a singer, songwriter, multi-instrumentalist, actor and writer who lives with spinal muscular atrophy (SMA). His song “Spaces” has over 744,000 views on…

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Episode 18 – Lights, Camera, Action – and Accessibility: Part 1

Born with a rare form of neuromuscular disease, Leah Zelaya faced a host of challenges including medical claims that she would possibly never walk. In…

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Episode 17: The ABCs of Accessible Travel

Today’s guest is Lorraine Woodward, an entrepreneur, business owner, and life-long advocate for people with disabilities. She is the creator of multiple businesses, services, and…

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Episode 16: Turning Pain into Purpose – An ALS Advocate’s Story

Sabrina Johnson lost her dad to ALS in 2019. In this episode, she shares how she turned her pain into purpose and became an ALS…

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Episode 15: Power of ALS Registries

Today we are connecting with the key players of two national ALS Registries to discuss the power that these registries harness to better understanding this…

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Episode 14: Know Your Rights – A Conversation with Judith Heumann

Judith (Judy) Heumann is a lifelong advocate for the rights of disabled people and is often referred to as “the MLK of the disability civil…

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Episode 13: Parenting

Parenting is one of the toughest jobs on the planet. It is also one of the best, most rewarding, incredible things you can do. In…

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Episode 12: Love & Marriage

Today in the spirit of Valentine’s Day, we are talking with two married couples about their dating and eventual marriage. Under most circumstances, dating and…

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Episode 11: Siblings Tell All

Having a sibling can be amazing. Siblings can be built-in playmates and best-friends, your partner in crime and a constant in an individual’s life. Siblings…

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Episode 10: Holiday Do-it-Yourself Gifts, Crafts & Recipes

Need a last-minute gift-giving idea? You’re in luck because in this episode, we are talking all about fun do-it-yourself crafts and gift-giving, recipes and more.…

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