Advocacy

Through advocacy, we make the MDA community’s voice heard and promote the interests of kids and adults living with neuromuscular diseases.

Bright color-block illustration of objects and people related to education and disabilities, including a lightbulb, pencil, eye, puzzle piece, and girl in a wheelchair.
Featured Article

Guide to Navigating IEPs and 504 Plans for Kids with Neuromuscular Diseases

By Joanna Buoniconti | May 26, 2026
Blog Post

Quest Podcast: The People Behind the People: Family Caregiving, Policy, and the Power of Showing Up

By MDA Staff | May 21, 2026
Judge's gavel falling and hitting the block with LEGISLATION inscription. 3D
Blog Post

Critical ALS Legislation You Need to Know About

By Paul Melmeyer | May 21, 2026
Closeup of Fiona Cauley sitting in her wheelchair
Blog Post

Comedian Fiona Cauley Shares Humor While Raising Disability Awareness

By Barbara and Jim Twardowski, RN | May 1, 2026
Blog Post

The Why Behind MDA’s Campaign to Support Family Caregivers

By Shannon Wood and Mark Fisher | April 30, 2026
John Crowly stands at a podium in the spotlight in a dark auditorium. Signage on the podium and behind him says MDA Clinical and Scientific Conference.
Blog Post

Pompe Disease and the Real Story Behind Dr. Stonehill, John Crowley, and ‘Extraordinary Measures’

By Amy Bernstein (Updated) | April 13, 2026
Blog Post

MDA Ambassador Guest Blog: My Pompe Journey

By Kathryn Arvidson | April 10, 2026
Blog Post

Quest Podcast: From Roadmap to Emmy: Samuel and Dan Habib on Filmmaking, Family, and Disability

By MDA Staff | April 9, 2026
Blog Post

MDA Ambassador Guest Blog: Rurally Complicated

By Jenna Ryerson | April 2, 2026
Blog Post

Life with Lily: Why an Expert Specialist is Crucial for Your Care

By Lily Sander | March 27, 2026