• Life with Lily: Preparing for College with a Neuromuscular Disease

    As I prepared for college after graduating high school, my experience mirrored that of many young adults in several ways. Like my peers, I searched for a welcoming campus culture, a strong program in my intended major, and a university that offers meaningful opportunities for collaboration, research, and learning. However, my journey differed fundamentally because…

  • FDA Approves First Muscle-Targeted Therapy for SMA: A Conversation with Dr. Se-Jin Lee

    The FDA has approved Isembyld (apitegromab-mstn), the first therapy designed to target muscle health and regeneration in people living with spinal muscular atrophy (SMA). This milestone adds to the progress made by genetic therapies for SMA and provides families with a new option focused on improving muscle strength and daily function. To help families understand…

  • In Case You Missed It…

    Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. With so many valuable…

  • Your Voice, Your Vote

    Voting is more than a civic responsibility. It is a declaration of presence, power, and participation. The decisions made by elected officials touch nearly every aspect of our lives—from access to healthcare and medical research to community-based services, caregiver support, transportation, education, and employment. For people living with disabilities, however, participating in an election may…

  • MDA Ambassador Guest Blog: Technology as a Tool for Independence

    Kareem Azzazi is a 38-year-old content creator from Minnesota living with Duchenne Muscular Dystrophy. He uses eye-tracking technology to write, stream, play games, and create content online as TheSaturverse. Technology has always been more than a convenience for me. For some people, technology makes life faster or easier. For me, it often determines whether I…

  • Donnie Demers: The Man Behind the Music

    When looking at the list of accomplishments and accolades that musician and multi-platinum selling song-writer Donnie Demers achieved during his career, it is impossible not to be impressed by his talent and success – but what his family and loved ones remember most about the composer is his unwavering and genuine love for music and…

  • Quest Podcast: A Conversation with Steve Way, Part 1: Inside Hulu’s Furious

    In this Quest Podcast episode, we sit down with actor, comedian, and disability advocate Steve Way, currently starring as Alden in Hulu’s hit thriller Furious. Steve talks about how the role was written for him after a chance meeting with creator Liz Meriwether on a panel about caregiving in media, the freedom he had to…

  • MDA’s Guide to the Air Carrier Access Act

    How the Air Carrier Access Act (ACAA) gives people with disabilities the right to air travel and protects people who fly with wheelchairs and scooters.

  • How to Find an Accessible Obstetrician-Gynecologist (OB/GYN)

    Questions about equipment, transfers, positioning, and telehealth can help women with neuromuscular diseases find accessible OB/GYN care that fits well.

  • Understanding Myotubular Myopathy (MTM)

    Neurologist Perry Shieh, MD, PhD, answers questions about myotubular myopathy, its symptoms, diagnosis, and the search for safer gene therapy.

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

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QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

See All Episodes

Episode 65-A Conversation with Steve Way, Part 1: Inside Hulu’s Furious

August 26, 2026

In this Quest Podcast episode, we sit down with actor, comedian, and disability advocate Steve Way, currently starring as Alden in Hulu’s hit thriller Furious. Steve talks about how the role was written for him after a chance meeting with creator Liz Meriwether on a panel about caregiving in media, the freedom he had to…

Episode 64-Your Difference Is Your Superpower: A Conversation with Cerys Davage

August 4, 2026

In this episode of the Quest Podcast, we chat with Cerys Davage, a Welsh podcaster and content creator living with limb-girdle muscular dystrophy (LGMD), who has turned her diagnosis into a platform for connection and representation. Cerys opens up about growing up in a family that chose openness over silence, the moment in university when…

Episode 63- The People Behind the People: Family Caregiving, Policy, and the Power of Showing Up

May 21, 2026

In this episode of the Quest Podcast, we chat with Nicole Lucas, a devoted family caregiver and dental hygienist who stepped away from her career so that her daughter could pursue her dreams; Carlee Weber, a 24-year-old law student at the University of Pittsburgh living with spinal muscular atrophy (SMA) who has never let expectations…