A Thank You to MDA Volunteers for the Incredible Joy and Hope They Spread

During this season of Thanksgiving, and throughout The Year of the Volunteer, MDA strives to acknowledge and honor the incredible impact our volunteers have on the families we serve. MDA’s mission to empower the people we serve to live longer, more independent lives would not be possible without the dedication of our volunteers. The time…

MDA Advocacy Update: Latest News on Federal Benefit Programs

As we approach the end of another year, the MDA Advocacy Team provides a recap of some of the most significant developments and expected changes with federal financial benefit programs this year. Read on for the most up-to-date analysis of what these changes will mean for you in terms of new developments with ABLE accounts,…

2023 Quest Media Photo Contest Winners

See the winning reader photos from the 2023 Quest Media Photo Contest.

My Myotonic Dystrophy Journey

Emily Blume shares her diagnostic journey discovering how she inherited and how to live with myotonic dystrophy (MD).

6 Questions to Ask Your Doctor to Get a Diagnosis

When doctors don’t know what you have, ask your healthcare providers these important questions to help them get to a diagnosis.

Genetic Testing Can Help Current and Aspiring Parents

Genetic testing and family planning can help parents understand risks of inherited diseases, prepare for them, and take action if they choose to.

Can Genetic Testing Make You Uninsurable?

When considering genetic testing, you should know how protections against genetic discrimination affect health, life, disability, and long-term care insurance.

What You Need to Know About COVID-19 and Neuromuscular Disease

Updates on COVID-19’s impact on neuromuscular diseases and how to protect yourself against the virus.

Q&A: Understanding Metabolic Myopathies

Neurologist Mark Terrelonge, MD, answers common questions about research and treatment for metabolic myopathies.

How a Doctor Turns His Disability Into a Strength

Abhiram Srivatsa, DO, shares how Emery-Dreifuss muscular dystrophy impacted his journey to becoming a doctor.

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.


The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Episode 35- Bridging the Gap Between Intention, Action, and Community Inclusion

In this Quest Podcast episode, we chat with the Director of Marketing and Communications at Idealist.org, President for New York Women in Communications (NYWICI) and host of the NYWICI WomenHeard Changemakers podcast.  Georgia Galanoudis had devoted her career to deliver advice, inspire action, and make us feel closer together while sharing stories of resilience and positivity. She…

Episode 34- Job Searching, Interviewing, and Employment with a Disability

In this Quest Podcast episode, we chat with a distinguished business leader from the St. Louis area, who lives with physical disabilities. Lori Becker, CEO of Starkloff Disability Institute, has devoted her career to promoting diversity and inclusion both in the workplace and in the community. She joins us to share her experiences, expertise, and advice…

Episode 33- Wheelchair Barbie Talks Advocacy and Inclusion

In this Quest Podcast episode, we chat with a renowned journalist, model and disability rights activist, who lives with physical disabilities. Madison Lawson, who has been featured in publications including Vogue, Glamour, Teen Vogue, Allure and brands like Sephora, PrettyLittle Thing, and Olay, joins us to share her experiences, expertise, and advice when it comes…