• Clinical Research Alert: Phase 3 Study of Vatiquinone in Individuals with Friedreich’s Ataxia

    Researchers at PTC Therapeutics are conducting the phase 3 Long-Term Efficacy Study of Vatiquinone for the Treatment of Friedreich’s Ataxia (PROVE-FA) study to learn more about Friedreich’s ataxia (FA) and to evaluate vatiquinone, an investigational therapy being studied for the treatment of FA. About the PROVE-FA study The PROVE-FA study is evaluating the efficacy and safety…

  • Some New Accessible Air Travel Rules Are Paused: Here’s What That Means for Travelers with Disabilities

    The 2024 Wheelchair Rule was passed to improve air travel for people with disabilities under the ACAA. But some rules are paused. Here’s what you need to know.

  • MDA Ambassador Guest Blog: From Pain to Inspiration

    Rodrigo Duran is a 35-year-old Latino who lives in Dallas, TX. He is an artist who studied at the Art Institute of Dallas. Although Rigo has dealt with many challenges due to living with a neuromuscular disease, he likes to focus on what’s most important to him. He wants his artwork to advocate for people…

  • Muscle Regeneration Remains a Hot Topic at MDA Clinical & Scientific Conference

    Every March, the leading clinicians and researchers in the field of neuromuscular disease join industry partners, advocacy organizations, and community members at the MDA Clinical & Scientific Conference to share their expertise on the exploration of new treatments, groundbreaking research, and clinical accomplishments. The conversations and presentations that occur at conference on topics related to…

  • Quest Podcast: Nothing Left to Prove: A Conversation with Kiersten Riggs

    In this episode of the Quest Podcast, we chat with Kiersten Riggs, a 24-year-old rare disease advocate from Tulsa, Oklahoma, who was a varsity cheerleader when her family first heard the words Friedreich’s ataxia (FA). Kiersten opens up about being diagnosed alongside her older sister, the four years she spent hiding from the FA community…

  • Six Ways You Can Make a Difference

    MDA’s mission to empower people living with neuromuscular disease to live longer, more independent lives is pursued through a variety of influential and meaningful endeavors. From accelerating research and advancing care to advocating support and providing opportunities for members of our community to connect, grow, and shine – there are a multitude of different ways…

  • A Look Back at the Quest Summer Product Guide of 2026

    The MDA Quest Media Product Guide is designed to help you find the products you need to live a more independent, stylish, fun, and all-around great life. All the products you see here were chosen by MDA Ambassadors, who shared exactly how each product helps them in their daily lives. Find something for yourself, or…

  • In Case You Missed It…

    Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. With so many valuable…

  • Quest Podcast: A Conversation with Steve Way, Part 2: Medicaid, Self-Advocacy, and the Life You Want

    In this episode of Quest Podcast, actor, comedian, and disability advocate Steve Way returns to continue our conversation, this time getting even more personal about his own reliance on home and community-based services and what independence really requires. Steve explains how these services make everything possible, from getting out of bed to doing his job,…

  • Reporting Back from MDA’s First-Ever Advocacy Captain Hill Day

    On September 29 – 30, 2026, advocates returned to Washington D.C. for a Hill Day specifically geared to those in the MDA Advocacy Captain (MAC) program. From as far away as Alaska, MAC members from across the country traveled to the nation’s capital to urge lawmakers to support policies that will empower the neuromuscular community,…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Seen for Your Skills: Disability, Employment, and Belonging with Lauren Martin

In recognition of National Disability Employment Awareness Month (NDEAM), this episode of the Quest Podcast features a conversation with Lauren Martin, a communications professional at CITGO who lives with spinal muscular atrophy (SMA), about building a career, navigating disability in the workplace, and what meaningful inclusion really looks like. Lauren reflects on growing up with…

Episode 68- Nothing Left to Prove: A Conversation with Kiersten Riggs

In this episode of the Quest Podcast, we chat with Kiersten Riggs, a 24-year-old rare disease advocate from Tulsa, Oklahoma, who was a varsity cheerleader when her family first heard the words Friedreich’s ataxia (FA). Kiersten opens up about being diagnosed alongside her older sister, the four years she spent hiding from the FA community…

Episode 67- A Conversation with Steve Way, Part 2: Medicaid, Self-Advocacy, and the Life You Want

In this episode of Quest Podcast, actor, comedian, and disability advocate Steve Way returns to continue our conversation, this time getting even more personal about his own reliance on home and community-based services and what independence really requires. Steve explains how these services make everything possible, from getting out of bed to doing his job,…