Considerations and Tips to Plan for Pregnancy with a Neuromuscular Disease

Moms living with neuromuscular diseases and maternal-fetal medicine specialists share experiences and expert guidance for pregnancy, delivery, and postpartum.

MDA’s DME Grant Program Helps Get Essential Equipment to Live Well

MDA’s DME Grant Program helps people access essential durable medical equipment for greater independence and daily support.

Finding the Funny: Fiona Cauley Uses Comedy to Raise Disability Awareness

Headlining comedian Fiona Cauley uses humor and honesty to raise awareness about Friedreich ataxia and living with disability.

Foster Care, Adoption, and Surrogacy Considerations for Parents with Neuromuscular Diseases

For people living with disabilities, adoption, surrogacy, and foster care may be meaningful ways to build a family or parent kids who need stability.

New Cardiac Insights Show How Neuromuscular Diseases Affect the Heart

Researchers are learning more about how neuromuscular diseases affect the heart, leading to earlier cardiac screening and better management.

Guide to Navigating IEPs and 504 Plans for Kids with Neuromuscular Diseases

Understanding IEP and 504 plan eligibility, accommodations, how to request support, and how they work in real-world examples of students with disabilities.

Stars in the Shower: How Listening to My Body Led Me to a Second Diagnosis

A woman living with muscular dystrophy shares how listening to her body and recording her symptoms led to a second diagnosis

Accessible Birding: An Inclusive Window to Nature and Wildlife

A birder with muscular dystrophy shares his story, adaptive equipment journey, and how birdwatching can improve your health and well-being.

Quest Podcast: The People Behind the People: Family Caregiving, Policy, and the Power of Showing Up

In this episode of the Quest Podcast, we chat with Nicole Lucas, a devoted family caregiver and dental hygienist who stepped away from her career so that her daughter could pursue her dreams; Carly Weber, a 24-year-old law student at the University of Pittsburgh living with spinal muscular atrophy (SMA) who has never let expectations…

Critical ALS Legislation You Need to Know About

Critical ALS Legislation You Need to Know About As we near the end of ALS Awareness Month, the work is just beginning to get critical legislation for those with ALS passed by Congress. This year, MDA is prioritizing and advocating for three major ALS congressional initiatives in service of those living with ALS. First, we…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Episode 63- The People Behind the People: Family Caregiving, Policy, and the Power of Showing Up

In this episode of the Quest Podcast, we chat with Nicole Lucas, a devoted family caregiver and dental hygienist who stepped away from her career so that her daughter could pursue her dreams; Carly Weber, a 24-year-old law student at the University of Pittsburgh living with spinal muscular atrophy (SMA) who has never let expectations…

Episode 62- From Roadmap to Emmy: Samuel and Dan Habib on Filmmaking, Family, and Disability

In this Quest Podcast episode, we chat with Emmy Award-winning filmmaker and disability advocate Samuel Habib and his father and longtime collaborator Dan Habib, the creative duo behind the extraordinary documentary The Ride Ahead. In the film, Samuel opens up about his personal journey into adulthood — navigating housing, employment, relationships, and higher education while…

Episode 61- Pizazz, Purpose, and Periodic Paralysis: How Cienna Ditri Turns Lived Experience into Advocacy

In this Quest Podcast episode, we chat with advocate, social media influencer, and President of the Periodic Paralysis Association (PPA), Cienna Ditri, who lives with periodic paralysis. Cienna shares her diagnostic journey — from childhood soccer games where something felt “off” to finally getting answers — and how living with an unpredictable condition has shaped…