• Clinical Research Alert: Clinical Study for Children and Teenagers with SMA

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  • Quest Podcast: Your Difference Is Your Superpower: A Conversation with Cerys Davage

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  • Clinical Research Alert: Observational Study of Muscle Function and Structure in Individuals with BMD/DMD

    Researchers at Carle Foundation Hospital in Urbana, IL are seeking individuals living with Becker or Duchenne muscular dystrophy (BMD/DMD) to participate in an observational study using Diffusion Tensor MRI to examine muscle function and structure. The study aims to better understand why muscles in BMD and DMD may be more prone to damage, and how…

  • MDA Ambassador Guest Blog: Life Beyond the Ramp

    Chloe Crabb lives in Colorado with spinal muscular atrophy (SMA). She is a high school freshman and absolutely loves all things related to education and advocacy. Chloe lives with her parents, two cats named Mochi and Gracie, and her dog, Maggie. FUN FACT: Chloe loves sports cars and her dream car is a Porsche 918…

  • Access, Impact, and Connection at the MDA Clinical & Scientific Conference

    The annual MDA Clinical & Scientific Conference is the largest global gathering of leading experts dedicated to the advancement of care and research for people living with neuromuscular disease (NMD). Each year, neurologists, researchers, industry partners, and patient advocates convene to share the latest scientific breakthroughs, current clinical trials, and evolving treatment landscape as they…

  • MDA Ambassador Guest Blog: The Power of Lasting Friendships

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    Walker-Warburg syndrome (WWS) is a rare, inherited disorder that significantly affects the muscles, brain, and eyes. It is a form of congenital muscular dystrophy (CMD), a group of genetic muscle diseases that become apparent within the first two years after birth. It is also the most severe form of a group of disorders known as…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

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QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

See All Episodes

Episode 64-Your Difference Is Your Superpower: A Conversation with Cerys Davage

August 4, 2026

In this episode of the Quest Podcast, we chat with Cerys Davage, a Welsh podcaster and content creator living with limb-girdle muscular dystrophy (LGMD), who has turned her diagnosis into a platform for connection and representation. Cerys opens up about growing up in a family that chose openness over silence, the moment in university when…

Episode 63- The People Behind the People: Family Caregiving, Policy, and the Power of Showing Up

May 21, 2026

In this episode of the Quest Podcast, we chat with Nicole Lucas, a devoted family caregiver and dental hygienist who stepped away from her career so that her daughter could pursue her dreams; Carlee Weber, a 24-year-old law student at the University of Pittsburgh living with spinal muscular atrophy (SMA) who has never let expectations…

Episode 62- From Roadmap to Emmy: Samuel and Dan Habib on Filmmaking, Family, and Disability

April 9, 2026

In this Quest Podcast episode, we chat with Emmy Award-winning filmmaker and disability advocate Samuel Habib and his father and longtime collaborator Dan Habib, the creative duo behind the extraordinary documentary The Ride Ahead. In the film, Samuel opens up about his personal journey into adulthood — navigating housing, employment, relationships, and higher education while…