• Quest Podcast: A Conversation with Steve Way, Part 2: Medicaid, Self-Advocacy, and the Life You Want

    In this episode of Quest Podcast, actor, comedian, and disability advocate Steve Way returns to continue our conversation, this time getting even more personal about his own reliance on home and community-based services and what independence really requires. Steve explains how these services make everything possible, from getting out of bed to doing his job,…

  • Reporting Back from MDA’s First-Ever Advocacy Captain Hill Day

    On September 29 – 30, 2026, advocates returned to Washington D.C. for a Hill Day specifically geared to those in the MDA Advocacy Captain (MAC) program. From as far away as Alaska, MAC members from across the country traveled to the nation’s capital to urge lawmakers to support policies that will empower the neuromuscular community,…

  • Clinical Research Alert: Observational Study of MRI/MRS Measures in Boys with DMD

    Researchers at the University of Florida are seeking non-ambulatory boys living with Duchenne muscular dystrophy (DMD) to participate in a study evaluating advanced imaging techniques. The goal is to determine whether these techniques can be used in future clinical trials to assess new therapies aimed at improving muscle and cardiac health in people with DMD. About…

  • MDA Ambassador Guest Blog: Never Let Your Limitations Be Your Limit: Transitioning from College to a Career with a Disability

    Sydney Horak lives in Texas and is diagnosed with spinal muscular atrophy (SMA). She earned a master’s degree in Management Information Systems and bachelor’s degrees in Accounting and Business Honors from Texas A&M University and now works in Digital Assurance and Transparency at PwC in Houston. FUN FACT: Sydney is also a children’s book author…

  • Remembering Brooke Eby: A Friend Who Taught Us to Laugh, Connect, and Live Fully

    A personal remembrance of a friend, advocate, fundraiser, community builder, and unforgettable force for the ALS community. There are some people you meet who are simply impossible not to like. The first time I interviewed Brooke Eby for the MDA Quest Podcast in 2023, I actually told her that. I had seen her on the Today show…

  • For Frightful Fun, Book a Stay at an Accessible Haunted Hotel

    Five historic hotels combine ghost stories with verified accessibility features for travelers with disabilities. Here’s what to know before booking a stay.

  • Simply Stated: Updates in Paramyotonia Congenita

    Paramyotonia congenita (also known as Von Eulenberg disease) is a rare inherited disorder that causes episodes of muscle weakness, stiffness, or paralysis (inability to move). These episodes typically affect the face, neck and upper extremities, and can last from minutes up to hours. They are often triggered or exacerbated by cold temperatures or repeated muscle…

  • Every Collegiate™ Apparel Brings Inclusion to Campus

    Mo Gerhardt is changing the game when it comes to accessible and inclusive fashion. The 48-year-old retired Michigan State University (MSU) Academic Advisor and Women’s Basketball Academic Coordinator, who lives with LGMD 2D, has found passion and purpose in his second chapter through the creation of Every Spartan™. Every Spartan is a first-of-its-kind clothing line…

  • MDA Ambassador Guest Blog: A Different Kind of Adventure – The Ups & Downs of Living with LGMD

    William Quickel lives in East Tennessee. He was diagnosed with a rare form of limb-girdle muscular dystrophy (LGMD) in 2021, when he was 27 years old. He has shared his story through his YouTube Channel and currently works for a local nonprofit that serves and supports teens and adults with autism. There was a time…

  • Quest Podcast: More CMT Clinical Trials Than Ever Before: Inside the Research Turning Point

    In this episode of Quest Podcast, we chat with Sue Bruhn, PhD, CEO of the Charcot-Marie-Tooth Association (CMTA); Stephan Züchner, MD, PhD, Chief Genomics Officer at the University of Miami Miller School of Medicine; and Brian Lin, PhD, Senior Research Portfolio Director at the Muscular Dystrophy Association. Together, they break down what Charcot-Marie-Tooth disease (CMT)…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

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QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

See All Episodes

Episode 67- A Conversation with Steve Way, Part 2: Medicaid, Self-Advocacy, and the Life You Want

October 7, 2026

In this episode of Quest Podcast, actor, comedian, and disability advocate Steve Way returns to continue our conversation, this time getting even more personal about his own reliance on home and community-based services and what independence really requires. Steve explains how these services make everything possible, from getting out of bed to doing his job,…

Episode 66: More CMT Clinical Trials Than Ever Before: Inside the Research Turning Point

September 20, 2026

In this episode of Quest Podcast, we chat with Sue Bruhn, PhD, CEO of the Charcot-Marie-Tooth Association (CMTA); Stephan Züchner, MD, PhD, Chief Genomics Officer at the University of Miami Miller School of Medicine; and Brian Lin, PhD, Senior Research Portfolio Director at the Muscular Dystrophy Association. Together, they break down what Charcot-Marie-Tooth disease (CMT)…

Episode 65-A Conversation with Steve Way, Part 1: Inside Hulu’s Furious

August 26, 2026

In this Quest Podcast episode, we sit down with actor, comedian, and disability advocate Steve Way, currently starring as Alden in Hulu’s hit thriller Furious. Steve talks about how the role was written for him after a chance meeting with creator Liz Meriwether on a panel about caregiving in media, the freedom he had to…