• Quest Podcast: Your Difference Is Your Superpower: A Conversation with Cerys Davage

    In this episode of the Quest Podcast, we chat with Cerys Davage, a Welsh podcaster and content creator living with limb-girdle muscular dystrophy (LGMD), who has turned her diagnosis into a platform for connection and representation. Cerys opens up about growing up in a family that chose openness over silence, the moment in university when…

  • Clinical Research Alert: Observational Study of Muscle Function and Structure in Individuals with BMD/DMD

    Researchers at Carle Foundation Hospital in Urbana, IL are seeking individuals living with Becker or Duchenne muscular dystrophy (BMD/DMD) to participate in an observational study using Diffusion Tensor MRI to examine muscle function and structure. The study aims to better understand why muscles in BMD and DMD may be more prone to damage, and how…

  • MDA Ambassador Guest Blog: Life Beyond the Ramp

    Chloe Crabb lives in Colorado with spinal muscular atrophy (SMA). She is a high school freshman and absolutely loves all things related to education and advocacy. Chloe lives with her parents, two cats named Mochi and Gracie, and her dog, Maggie. FUN FACT: Chloe loves sports cars and her dream car is a Porsche 918…

  • Access, Impact, and Connection at the MDA Clinical & Scientific Conference

    The annual MDA Clinical & Scientific Conference is the largest global gathering of leading experts dedicated to the advancement of care and research for people living with neuromuscular disease (NMD). Each year, neurologists, researchers, industry partners, and patient advocates convene to share the latest scientific breakthroughs, current clinical trials, and evolving treatment landscape as they…

  • MDA Ambassador Guest Blog: The Power of Lasting Friendships

    Cassidy Nilles is a 36-year-old living with LGMD 2J who lives in the suburbs of Chicago. Diagnosed at age 20, she started using a wheelchair after the birth of her daughter at 28. She is a single mom to her 8-year-old daughter Capri. Together they live in a multi-family home with her parents and her…

  • Simply Stated: Updates in Walker-Warburg Syndrome

    Walker-Warburg syndrome (WWS) is a rare, inherited disorder that significantly affects the muscles, brain, and eyes. It is a form of congenital muscular dystrophy (CMD), a group of genetic muscle diseases that become apparent within the first two years after birth. It is also the most severe form of a group of disorders known as…

  • Clinical Research Alert: Phase 3 Study of Salanersen in Older Teens and Adults with SMA

    Researchers at Biogen are conducting the phase 3 SOLAR study to learn more about spinal muscular atrophy (SMA) and to evaluate salanersen, an investigational therapy being studied for the treatment of SMA in individuals 15-60 years old. Salanersen is investigational and has not been approved by regulatory authorities. About the SOLAR study The SOLAR study is…

  • MDA Ambassador Guest Blog: What the Disability Movement Means to Me

    Callie Hall lives in Orlando Florida and lives with a unique neuromuscular disability. She is passionate about disability rights, bluegrass mandolin, and being outdoors. RIIIIIIIING the school bell signals the end of the class period.  My teacher says, “Alright everyone, we have finished our week of learning about all the Civil Rights Movements.” Chairs shift…

  • Respiratory Support Makes a Big Difference: Community Perspectives on Using a Ventilator

    Community members who use breathing devices say their ventilators support their freedom, mobility, and energy and improve respiratory health.

  • How One Man with DMD is Using His Medical Emergency Experience to Educate Others

    Zach Fine and his family know firsthand how imperative it is to have an advocate to educate and fight for your needs while receiving medical care. Zach, a twenty-nine-year-old who lives with Duchenne muscular dystrophy (DMD), broke his femur two years ago and experienced severe complications during his emergency hospital stay. Throughout his hospitalization, his…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

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Quest Podcast: Your Difference Is Your Superpower: A Conversation with Cerys Davage

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QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

See All Episodes

Episode 64-Your Difference Is Your Superpower: A Conversation with Cerys Davage

August 4, 2026

In this episode of the Quest Podcast, we chat with Cerys Davage, a Welsh podcaster and content creator living with limb-girdle muscular dystrophy (LGMD), who has turned her diagnosis into a platform for connection and representation. Cerys opens up about growing up in a family that chose openness over silence, the moment in university when…

Episode 63- The People Behind the People: Family Caregiving, Policy, and the Power of Showing Up

May 21, 2026

In this episode of the Quest Podcast, we chat with Nicole Lucas, a devoted family caregiver and dental hygienist who stepped away from her career so that her daughter could pursue her dreams; Carlee Weber, a 24-year-old law student at the University of Pittsburgh living with spinal muscular atrophy (SMA) who has never let expectations…

Episode 62- From Roadmap to Emmy: Samuel and Dan Habib on Filmmaking, Family, and Disability

April 9, 2026

In this Quest Podcast episode, we chat with Emmy Award-winning filmmaker and disability advocate Samuel Habib and his father and longtime collaborator Dan Habib, the creative duo behind the extraordinary documentary The Ride Ahead. In the film, Samuel opens up about his personal journey into adulthood — navigating housing, employment, relationships, and higher education while…