• Muscle Regeneration Remains a Hot Topic at MDA Clinical & Scientific Conference

    Every March, the leading clinicians and researchers in the field of neuromuscular disease join industry partners, advocacy organizations, and community members at the MDA Clinical & Scientific Conference to share their expertise on the exploration of new treatments, groundbreaking research, and clinical accomplishments. The conversations and presentations that occur at conference on topics related to…

  • Quest Podcast: Nothing Left to Prove: A Conversation with Kiersten Riggs

    In this episode of the Quest Podcast, we chat with Kiersten Riggs, a 24-year-old rare disease advocate from Tulsa, Oklahoma, who was a varsity cheerleader when her family first heard the words Friedreich’s ataxia (FA). Kiersten opens up about being diagnosed alongside her older sister, the four years she spent hiding from the FA community…

  • Six Ways You Can Make a Difference

    MDA’s mission to empower people living with neuromuscular disease to live longer, more independent lives is pursued through a variety of influential and meaningful endeavors. From accelerating research and advancing care to advocating support and providing opportunities for members of our community to connect, grow, and shine – there are a multitude of different ways…

  • A Look Back at the Quest Summer Product Guide of 2026

    The MDA Quest Media Product Guide is designed to help you find the products you need to live a more independent, stylish, fun, and all-around great life. All the products you see here were chosen by MDA Ambassadors, who shared exactly how each product helps them in their daily lives. Find something for yourself, or…

  • In Case You Missed It…

    Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. With so many valuable…

  • Quest Podcast: A Conversation with Steve Way, Part 2: Medicaid, Self-Advocacy, and the Life You Want

    In this episode of Quest Podcast, actor, comedian, and disability advocate Steve Way returns to continue our conversation, this time getting even more personal about his own reliance on home and community-based services and what independence really requires. Steve explains how these services make everything possible, from getting out of bed to doing his job,…

  • Reporting Back from MDA’s First-Ever Advocacy Captain Hill Day

    On September 29 – 30, 2026, advocates returned to Washington D.C. for a Hill Day specifically geared to those in the MDA Advocacy Captain (MAC) program. From as far away as Alaska, MAC members from across the country traveled to the nation’s capital to urge lawmakers to support policies that will empower the neuromuscular community,…

  • Clinical Research Alert: Observational Study of MRI/MRS Measures in Boys with DMD

    Researchers at the University of Florida are seeking non-ambulatory boys living with Duchenne muscular dystrophy (DMD) to participate in a study evaluating advanced imaging techniques. The goal is to determine whether these techniques can be used in future clinical trials to assess new therapies aimed at improving muscle and cardiac health in people with DMD. About…

  • MDA Ambassador Guest Blog: Never Let Your Limitations Be Your Limit: Transitioning from College to a Career with a Disability

    Sydney Horak lives in Texas and is diagnosed with spinal muscular atrophy (SMA). She earned a master’s degree in Management Information Systems and bachelor’s degrees in Accounting and Business Honors from Texas A&M University and now works in Digital Assurance and Transparency at PwC in Houston. FUN FACT: Sydney is also a children’s book author…

  • Remembering Brooke Eby: A Friend Who Taught Us to Laugh, Connect, and Live Fully

    A personal remembrance of a friend, advocate, fundraiser, community builder, and unforgettable force for the ALS community. There are some people you meet who are simply impossible not to like. The first time I interviewed Brooke Eby for the MDA Quest Podcast in 2023, I actually told her that. I had seen her on the Today show…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Episode 68- Nothing Left to Prove: A Conversation with Kiersten Riggs

In this episode of the Quest Podcast, we chat with Kiersten Riggs, a 24-year-old rare disease advocate from Tulsa, Oklahoma, who was a varsity cheerleader when her family first heard the words Friedreich’s ataxia (FA). Kiersten opens up about being diagnosed alongside her older sister, the four years she spent hiding from the FA community…

Episode 67- A Conversation with Steve Way, Part 2: Medicaid, Self-Advocacy, and the Life You Want

In this episode of Quest Podcast, actor, comedian, and disability advocate Steve Way returns to continue our conversation, this time getting even more personal about his own reliance on home and community-based services and what independence really requires. Steve explains how these services make everything possible, from getting out of bed to doing his job,…

Episode 66: More CMT Clinical Trials Than Ever Before: Inside the Research Turning Point

In this episode of Quest Podcast, we chat with Sue Bruhn, PhD, CEO of the Charcot-Marie-Tooth Association (CMTA); Stephan Züchner, MD, PhD, Chief Genomics Officer at the University of Miami Miller School of Medicine; and Brian Lin, PhD, Senior Research Portfolio Director at the Muscular Dystrophy Association. Together, they break down what Charcot-Marie-Tooth disease (CMT)…