Quest Podcast

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Quest podcast, proudly presented by the Muscular Dystrophy Association, brings thoughtful conversation to the neuromuscular disease community and beyond about issues affecting individuals living with disabilities and those who love them. Our mission is to bring about more awareness, to educate and inform, to demystify and inspire, to contribute to progress, and…at times…to entertain. Thank you for listening!

Mindy Henderson

Mindy Henderson

About Our Host

Mindy Henderson, Director of Quest Media and host of the Quest podcast, was diagnosed with spinal muscular atrophy, type 2 when she was 15 months old. Mindy is also a motivational speaker and author, and just released her first book, The Truth About Things That Suck.

Episode 23 – Advocacy, Accessibility, and the DOT

Barriers in travel and the lack of accessible transportation are huge issues for many people living with nueromuscular disease and other physical disabilities. Today, we…

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Episode 22 – Creating an Inclusive Work Environment

Inclusively is a technology centered inclusions solution and employment platform for job seekers with disabilities, mental health conditions, and chronic illnesses. Inclusively’s vision is to…

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Episode 21 – MDA Let’s Play – A Community for Everyone

MDA Let’s Play is a welcoming online gathering place for teens and adults where they play together, forge new friendships, share similar challenges, learn new…

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Episode 20 – Lights, Camera, Action – and Accessibility: Part 3

As the third podcast in our accessibility in the entertainment world, we sit down with Jonathan Lengel. Jonathan is an actor, singer, and performer who…

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Episode 19 – Lights, Camera, Action – and Accessibility: Part 2

James Ian is a singer, songwriter, multi-instrumentalist, actor and writer who lives with spinal muscular atrophy (SMA). His song “Spaces” has over 744,000 views on…

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Episode 18 – Lights, Camera, Action – and Accessibility: Part 1

Born with a rare form of neuromuscular disease, Leah Zelaya faced a host of challenges including medical claims that she would possibly never walk. In…

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Episode 17: The ABCs of Accessible Travel

Today’s guest is Lorraine Woodward, an entrepreneur, business owner, and life-long advocate for people with disabilities. She is the creator of multiple businesses, services, and…

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Episode 16: Turning Pain into Purpose – An ALS Advocate’s Story

Sabrina Johnson lost her dad to ALS in 2019. In this episode, she shares how she turned her pain into purpose and became an ALS…

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Episode 15: Power of ALS Registries

Today we are connecting with the key players of two national ALS Registries to discuss the power that these registries harness to better understanding this…

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Episode 14: Know Your Rights – A Conversation with Judith Heumann

Judith (Judy) Heumann is a lifelong advocate for the rights of disabled people and is often referred to as “the MLK of the disability civil…

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