In Case You Missed It…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

With so many valuable podcasts, blog articles, and magazine articles available to our audience, chances are that you may have missed one or two pieces of interesting content. Check out the summaries and links below.

In case you missed it… Quest Blogs:

Remembering Brooke Eby: A Friend Who Taught Us to Laugh, Connect, and Live Fully

Mindy Henderson, Quest Editor-In-Chief, shares her heartfelt tribute to Brooke Eby. Brooke passed away on October 1 at the age of 37 after living with amyotrophic lateral sclerosis (ALS). Brooke was an advocate, social media phenomenon, and  extraordinary voice for the ALS community – and a cherished friend who shared her life and laughter with world. Read more. 

Simply Stated: Updates in Paramytonia Congenita

Paramyotonia congenita (also known as Von Eulenberg disease) is a rare inherited disorder that causes episodes of muscle weakness, stiffness, or paralysis (inability to move). These episodes typically affect the face, neck and upper extremities, and can last from minutes up to hours. They are often triggered or exacerbated by cold temperatures or repeated muscle activity/exercise. Learn more about symptoms, cause, diagnosis, current management, and MDA’s work to further cutting-edge paramyotonia congenita research here.

In case you missed it… Quest Podcast:

Episode 65: A Conversation with Steve Way, Part 1: Inside Hulu’s Furious

In this Quest Podcast episode, we sit down with actor, comedian, and disability advocate Steve Way, currently starring as Alden in Hulu’s hit thriller Furious. Steve talks about how the role was written for him after a chance meeting with creator Liz Meriwether on a panel about caregiving in media, the freedom he had to improvise on set, and what it meant to finally portray a romantic disabled relationship on screen  He’s equally candid about where Hollywood still gets representation wrong, and why the attention he’s getting now can’t stop with him. Steve shares his experiences, expertise, and heartfelt perspective on visibility, artistic risk, and what strength looks like when you want to quit. Listen here.

In case you missed it…Quest Product Guide:

Quest Holiday Product Guide

The new Quest Holiday Product Guide is here! These thoughtfully selected products are used and recommended by MDA Ambassadors to make travel, technology, home accessibility, and day-to-day activities more independent and adaptive. Designed to help you find products that make life more independent, stylish, and fun, the guide is the perfect place to shop for gift-giving inspiration. Check out the newest Product Guide here.