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Charlotte, after coming home from MDA camp, glowing with happiness from the experience
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MDA Ambassador Guest Blog: The Secret to Navigating Life with a Rare Disease? Say Yes.

By Alexa and Charlotte Colella | February 18, 2026
Side view of a conference room full of seated audience members with a man speaking at a microphone
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Everything You Need to Know About the Upcoming 2026 MDA Clinical & Scientific Conference

By Rebecca Hume | February 16, 2026
Spending time in Mexico for our 30th anniversary
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MDA Ambassador Guest Blog: Grateful for the One by My Side on Valentine’s Day (and Every Day)

By Jeff Thomas | February 12, 2026
Book with title The Americans with Disabilities Act (ADA).
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Recent Updates with Section 504

By Shannon Wood and Joel Cartner | February 11, 2026
A young woman with dark hair and glasses smiles in front of a hospital
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International Day of Women and Girls in Science: MDA Spotlight on Elizabeth Madole

By Rebecca Hume | February 9, 2026
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In Case You Missed It…

By MDA Staff | February 8, 2026
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Our 2026 Advocacy Agenda

By Mark Fisher | February 5, 2026
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MDA Ambassador Guest Blog: Pursuing My Dreams While Living with a Rare Disease

By Gabrielle Runyon | February 4, 2026
Synapse and neuron on a blue background. 3d rendering.
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Simply Stated: Understanding Myotonia Congenita

By Sujatha Gurunathan | January 31, 2026
A group poses in front of the cathedral in Santiago, Spain
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Making the Impossible Possible: One Man’s Journey on the Camino de Santiago de Compostela

By Rebecca Hume | January 27, 2026