News

Read the latest news about issues affecting the neuromuscular disease community.

Blog Post

A Government Shutdown Couldn’t Stop Advocates During MDA on the Hill 2025

By Mark Fisher | November 25, 2025
A heartwarming scene shows a caregiver pushing a wheelchair through a serene park filled with vibrant nature
Blog Post

5 Things Advocates Should Know: The Alleviating Barriers for Caregivers Act

By Shannon Wood | November 17, 2025
Illustration of a microscope and surrounded by beakers and test tubes.
Featured Article

Progress Now: Immunotherapy Study Recruiting, Drug Cleared for Expanded Access, and More

By MDA Staff | November 14, 2025
A group of scientists at the 2025 MDA Clinical & Scientific Conference, one way MDA fosters collaboration among experts across neuromuscular diseases.
Featured Article

MDA’s Umbrella of Care: One Organization Connecting 300+ Neuromuscular Diseases

By Michelle Jackson | November 12, 2025
Blog Post

Getting Ready for the 2026 MDA Clinical & Scientific Conference

By MDA Staff | October 30, 2025
Portland, OR, USA - Oct 28, 2020: "SNAP welcomed here" sign is seen at the entrance to a Big Lots store in Portland, Oregon. The Supplemental Nutrition Assistance Program (SNAP) is a federal program.
Blog Post

What to Know About Changes to Food Assistance through SNAP

By Shannon Wood | October 27, 2025
Blog Post

Quest Podcast: Voices of Inclusion: Celebrating NDEAM with Disability:IN

By MDA Staff | October 21, 2025
Blog Post

MDA Summer Camp Alumni Put the Power in Powerhockey

By Rebecca Hume | September 24, 2025
wooden blocks spell out the word content with word bubbles above that say news and stories and photos and blog
Blog Post

In Case You Missed It…

By MDA Staff | September 8, 2025
Team of professional doctors and nurses examining newborn baby at the hospital. Healthcare and medicine concept.
Blog Post

MDA Advocacy Team Reports Updates in Newborn Screening Legislation

By Paul Melmeyer | September 4, 2025