Finding a Diagnosis

Blog Post

Celebrating Independence with the Juracks

By Annie Zimmerman | July 6, 2023
Woman in blue sweater and man with a white towel around his neck and a breathing apparatus on his face
Blog Post

Quest Podcast: A Conversation with Steve Way

By MDA Staff | June 23, 2023
Seven sisters in their 60s with their mother
Blog Post

Hope for the Future: A Family Living with Myofibrillar Myopathy Zaspopathy Raises Awareness for Rare Disease Research

By Rebecca Hume | June 15, 2023
Family portrait of mother and father smiling with two young girls in a field
Blog Post

How One Family’s Myasthenia Gravis Journey is Helping Others

By Rebecca Hume | June 9, 2023
Closeup of Jodi O’Donnell-Ames, a white woman with long black hair, sitting with her arms around her knees, wearing a purple Hope Loves Company sweatshirt.
Featured Article

Talking About a Diagnosis Is a Personal Decision

By Cheryl Alkon | May 18, 2023
Shiny silver broken heart that shines in the middle
Featured Article

Learning to Manage the Grief of a Progressive Disease

By Barbara and Jim Twardowski, RN | May 18, 2023
Current, occurring, or functioning state within a cell. Cell functions. 3D illustration
Blog Post

Understanding Nutrition and Metabolic Disease

By MDA Staff | May 17, 2023
Mature Asian man doctors medical results during consultation on tablet computer with woman patient in health clinic. Medical health care concept.
Blog Post

Why Is It So Hard to Get a Diagnosis?

By Shaila Wunderlich | May 11, 2023
Motor neuron connecting to muscle fiber, 3D illustration. A neuromuscular junction allows the motor neuron to transmit a signal to the muscle causing contraction. It is affected by toxins and diseases
Blog Post

Simply Stated: Research Updates in Emery-Dreifuss Muscular Dystrophy (EDMD)

By Sujatha Gurunathan | April 28, 2023
Blog Post

Simply Stated: Elevated Enzymes

By Sharon Hesterlee, Evrim Atas, and Angela Lek | April 6, 2023