In Case You Missed It…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

With so many valuable podcasts, blog articles, and magazine articles available to our audience, chances are that you may have missed one or two pieces of interesting content. Check out the summaries and links below.

In case you missed it…Quest Product Guide:

The Quest Holiday Product Guide is Here!

As the holiday season approaches, this product guide is the perfect place to shop for gift-giving inspiration (and possibly find a thing or two for yourself). This guide is designed to help you find tried-and-true products that make life more independent, stylish, and fun. All the products you see here were chosen by MDA Ambassadors, who shared exactly how each product helps them in their daily lives. Shop here.

In case you missed it… Quest Blogs:

What to Know About Changes to Food Assistance through SNAP

Funding for the Supplemental Nutrition Assistance Program, which provides food assistance to more than 42 million children and adults across the country – including 4 million people with disabilities – will run out in November as a result of the federal government shutdown. Learn more about changes to SNAP as a result of the government shutdown, changes to SNAP as a result of the reconciliation bill, and what families affected by neuromuscular diseases can do to prepare for these changes. Read more. 

Simply Stated: Updates in Neuropathy Ataxia and Retinitis Pigmentosa (NARP) Syndrome

Neuropathy ataxia and retinitis pigmentosa (NARP) syndrome is a rare, maternally-inherited condition caused by mutations in mitochondrial DNA, affecting the energy-producing structures within cells. The condition typically begins in childhood or early adulthood and presents with a wide range of symptoms. These may include learning difficulties, muscle weakness (particularly around the eyes), uncoordinated movements (ataxia), and sensory changes in the hands and feet. Check out an overview of symptoms, causes, current management, observational studies, therapeutic efforts, and MDA’s work to further cutting-edge NARP research. Read more. 

In case you missed it… Quest Podcast:

Episode 57: Voices of Inclusion – Celebrating NDEAM with Disability:IN

In this Quest podcast episode, we dive into accessibility and inclusion in the workforce with Russell Shaffer, Executive Vice President of Strategy & Programs at Disability:IN. Drawing on his lived experience of vision loss and his years of working in corporate diversity, equity, and inclusion, Russell shares how businesses can move from compliance to strategic disability inclusion, key metrics and benchmarking that have led to tangible recommendations for employers, and how individuals with disabilities and organizations alike can lead the change. He shares his expertise and advice as we discuss creating inclusive workplaces, what’s next in the field of disability inclusion, and how we can all play a role in advancing employment and empowerment. Listen here.