News

Read the latest news about issues affecting the neuromuscular disease community.

A family poses with Disney's Pluto
Blog Post

Insurance Denials for Gene Therapy Treatment Delay Access to Care

By Rebecca Hume | September 29, 2023
Blog Post

MDA Continues to Lead the Way on Newborn Screening

By Paul Melmeyer | September 1, 2023
Business network concept. Group of people. Shaking hands. Customer support. Human relationship. Success of business. Management strategy.
Blog Post

MDA Announces New Round of Advocacy Collaboration Grants Funding

By Mark Fisher | August 17, 2023
Blog Post

Quest Podcast: Accessible Air Travel and Advocacy Updates

By MDA Staff | August 11, 2023
wooden blocks spell out the word content with word bubbles above that say news and stories and photos and blog
Blog Post

In Case You Missed It…

By MDA Staff | August 8, 2023
Amy Shinneman wearing a beige blazer, Leah Zelaya wearing an orange floral dress and Reagan Imhoff, in a pink and white tweed blazer, sit smiling in their wheelchairs with their hands in their laps in front of the US Capitol building.
Featured Article

MDA Advocates Return to Capitol Hill

By MDA Staff | August 8, 2023
Image of an airplane wing with words to left that read: US House Passes FAA Reauthorization
Blog Post

Air Travel Update: US House Passes FAA Reauthorization

By Mark Fisher | July 24, 2023
Blog Post

Introducing the NEW Quest Media Product Guide

By Mindy Henderson | July 11, 2023
wooden blocks spell out the word content with word bubbles above that say news and stories and photos and blog
Blog Post

In Case You Missed It…

By MDA Staff | July 8, 2023
Blog Post

FDA Approves Sarepta’s ELEVIDYS for Treatment of DMD

By Sujatha Gurunathan | June 22, 2023