Quest Product Guide May25_summ4

MDA Quest Media Product Guide

Welcome to the MDA Quest Media product guide! This guide is designed to help you find the products you need to live a more independent, stylish, fun, and all-around great life. All the products you see here were chosen by MDA Ambassadors, who shared exactly how each product helps them in their daily lives. Find something for yourself, or for someone else in your life who you want to get a thoughtful gift for. 

These items are recommended by MDA Ambassadors, but MDA does not receive any portion of the proceeds. This is a resource we have curated because we LOVE you and because we LOVE things that make your life just a little easier.

Shop 'Til you Drop!

These thoughtfully curated products are used and recommended by MDA Ambassadors. Each item you see here has enhanced the independence of one of our ambassadors and can do the same for other individuals living with a disability. 

Meet Our Ambassadors

Click on the buttons to read all about them and their favorite life hacks.

CarolineF_1-scaled-e1747763707100

Caroline F.

Ambassador Bio:

Caroline enjoys swimming, reading, and playing video games with friends. She hopes to spread awareness for individuals living with neuromuscular disease while embracing new opportunities.

FAVORITE LIFE-HACK:

I hang my clothes and important things down lower in my closet, so it’s easier in day-to-day life to get ready.

Caroline F.
JennaR_6

Jenna R.

Ambassador Bio:

Jenna is currently writing a book on how muscular dystrophy has shaped her life. In her free time she loves to bake, spend time with her nieces and nephew, sew, read, and make candles!

FAVORITE LIFE-HACKS:

My life hack is using car seat covers on my power chair so it’s easier to clean the seating and they keep it nice longer.

Jenna R.
Jordan-G-e1747769999346

Jordan G.

Ambassador Bio:

Jordan has never let his physical limitations hold him back from living the life he wants. He is upbeat, optimistic, and always has a positive attitude. He plays power soccer and loves participating in adaptive versions of water skiing, downhill skiing, ropes courses, and rock climbing.

FAVORITE LIFE-HACKS:

A cool life hack we have used is cutting pool noodles in half and into different sizes to use as a holder for different things or to give core support on certain types of seating when outside of wheelchairs

Jordan G.
Michael C

Michael C.

Ambassador Bio:

Michael is determined to show others that a diagnosis does not define one's abilities or limit one's dream. He has a love for baseball and will be playing in college! He plans to study biology and later attend medical school, where he hopes to specialize in genetics and neuromuscular diseases, contributing to advancements in treatment and patient care.

FAVORITE LIFE-HACKS:

As a student athlete, I have early morning wakeups. My favorite life hack is to change my alarm to my favorite song. This helps me not to feel tempted to snooze the alarm and fall back to sleep because I want to listen to the whole song!

Michael C.
KevinC_1-scaled-e1747763496286

Kevin C.

Ambassador Bio:

Kevin enjoys spending time with his family and coaching youth sports. He received a diagnosis of Charcot-Marie-Tooth (CMT) disease as an adult. He believes in the importance of supporting one another and is always open to sharing his experiences.

FAVORITE LIFE-HACKS:

Being a lifelong resident of Maine and its winters as well as living with CMT-1A Hereditary Neuropathy, I’ve had to get creative in ways to protect myself from further damage to my body. A quick and inexpensive life hack that I use is latex gloves under my winter gloves during outdoor work or activities. I slip on a pair and then grab my favorite gloves or mittens and off I go. My hands stay extremely warm and the cold temps can’t get to my neuropathy-filled fingers!

Kevin C.
Parker-4-e1747763804568

Parker H.

Ambassador Bio:

Parker is a graphic designer who dreams of starting her own business for adaptable clothing. In her free time, she likes to write, game, and listen to music. She especially likes jamming out to Taylor Swift! Parker always tries to find the bright side in everything!

FAVORITE LIFE-HACK:

I've always struggled to get a pillow that is small enough and yet firm enough to fit behind my shoulder blades to help my neck. By accident, I discovered a home made rice sock was the perfect fit. They're super quick and easy to make! All you need is a sock of any size (the longer the better), uncooked rice, and then just tie off the end once you fill it however much you want.

Parker H.
Sharon 2

Sharon T.

Ambassador Bio:

Sharon has the ‘gift of gab’ and loves to use it for good! She is a passionate advocate for the rights of the disability community and improved accessibility in her community and beyond. She continues to make beautiful quilts, works at a local hotel, and spends as much time as she can with her children and grandchildren.

FAVORITE LIFE-HACK:

My life hack is using store delivery services, especially for groceries. I use a wheelchair and am not able to push a grocery cart independently or lift heavy items.

Sharon T.
Sophia D

Sophia D.

Bio:
Sophia hopes to contribute to efforts that advance accessible and effective healthcare, rare disease research, and innovative technologies that improve people’s lives. To support this goal she plans to study neuroscience, public policy, or global health in college. In her free time, she creates jewelry and digital art for her Etsy shop.

FAVORITE LIFE-HACK:

If you don’t plan on folding laundry right after the dryer finishes, take each clothing item out and lay them flat in your laundry basket. This will prevent wrinkles from forming!

Sophia D.
Tarig-scaled-e1747763986378

Tarig I.

Bio:
Tarig is excited to advocate for others living with neuromuscular disease and help them gain the support they need to "live in the now." He is a self-described "workaholic" and enjoyed having a two decade long career which took him all over the world.

FAVORITE LIFE-HACK:

I use an Alexa Snap-On Smart Switch to control the lighting in my house. I always give the switch a clear, meaningful name like “bedroom light,” so that I can just say, “Alexa, turn off the bedroom light.” You can also build it into a routine and have Alexa turn it on or off along with other actions using a single voice command like “good morning” or “good night.”

Tarig I.
William-T-1-scaled-e1747769893970

William T.

Bio:
William is passionate about adaptive sports and has been parafencing for five years! Despite facing some physical challenges, William knows that he has the ability to make a huge impact and wants others living with neuromuscular diseases to feel the same.

FAVORITE LIFE-HACK:

Due to my muscle weakness, I place a chair beside the stove to allow myself to take breaks and sit while cooking, as standing for extended periods can be difficult.

William T.

Our Favorites

Summer is here and our MDA Ambassadors have curated a brand-new set of products for you to check out. Consider them your personal shoppers, and check out their recommendations below. Your new “favorite thing” may be a click away!

Find the perfect item here to enhance the independence of someone you love, and maybe a little something for yourself as well!

Magnetic Finger Glove

Recommended by: Kevin C .

Neuropathy in my hands makes building model cars with small screws difficult. Magnetic fingertip gloves are great for any hobby or activity with small metal par…

Keyboard Wrist Rest

Recommended by: Sophia D.

This is very helpful to reduce wrist pain if you are often on your computer.

NTBAY Tiny Pillows

Recommended by: Parker H.

Whether it’s behind my shoulders to help with posture or supporting my foot when I’m not wearing my AFO’s, this pillow is a lifesaver.

Permobil Smart Drive

Recommended by: William T.

This device is extremely useful. It attaches to the base of a lightweight manual wheelchair and will push your chair for you, though you do have to steer.

Star Metal Shoehorn

Recommended by: William T.

I use this for independence with dressing. It is much more durable than a plastic shoehorn. There are different lengths that offer different degrees of leverage…

Statik Magnetic Charging Cable

Recommended by: Sharon T.

This charger is great because you only have to connect the cable to your phone once. You leave it in your phone and attach the cable with the magnet to charge.

Overjoyed Game Controller

Recommended by: Parker H.

Gaming with MD was a huge struggle in my life. This innovative, adaptive controller lets you use your mouse for all actions. It changed my life.

Grabber Plus

Recommended by: William T.

This product is extremely useful to access out of reach items. It significantly increases my independence with daily tasks at home and in the community.

Handheld Bear Fan

Recommended by: Sophia D.

This is a fantastic travel item if you’re sensitive to the heat! It also functions as a portable charger and flashlight.

Hand Ice Pack Wrap

Recommended by: Michael C.

I am malignant hyperthermia susceptible; these keep me cool while playing sports or on summer trips. I keep them in a lunch bag with an ice pack until I need th…

FlexaBed

Recommended by: Jenna R.

The entire bed rises and lowers, making getting in and out of bed so much easier. The head and foot adjust to sit or lie down, great for comfort and transfers!

Flowy Butterfly Shorts

Recommended by: Caroline F.

I really like these skirts because they are so easy to put on and so comfy. And they are quick to put on when you are in a hurry.

Grabber

Recommended by: Jordan G.

This grabber is lightweight and handle is very easy to squeeze.

Floatation Device

Recommended by: Jordan G.

When you use this to go swimming, you can safely move on your own without someone holding onto you. Bonus: no need to inflate and deflate.

Drawing Glove

Recommended by: Kevin C .

My neuropathy makes it hard to fill out forms or write cards without smearing the writing. My 10-year-old son uses these for art, they solve my problem too!

MDA CORNER

Quest Magazine Subscription

Recommended by: Mindy H.

Stay up-to-date on the latest news, tools, and resources by signing up for a FREE subscription to Quest Magazine, and receive four issues a year.

Volunteer

Recommended by: Mindy H.

There are lots of volunteer opportunities with MDA! Volunteer at summer camp or other events, OR join our grassroots advocacy team to use your voice for change.

Donate to MDA

Recommended by: Mindy H.

Give the ultimate gift and help MDA continue to send kids to summer camp, fund research and provide world-class care through our care centers across the country