Tools& Resources

Blog Post

Quest Podcast: Defending Medicaid with the MDA Advocacy Team

By MDA Staff | April 17, 2025
Blog Post

Clinical Research Opportunity: LION-CS101 a Phase 1/2 Study of AB-1003 in Adults with LGMD2I/R9

By MDA Staff | March 31, 2025
Degradation of motor neurons, conceptual computer illustration. Motor neuron diseases are a group of neurodegenerative disorders including amyotrophic lateral sclerosis, progressive bulbar palsy and other. Amyotrophic lateral sclerosis, also referred to as Lou Gehrig's disease is the most common of the motor neuron diseases. Nerve degeneration and restricted production of the neurotransmitter dopamine results in deterioration of muscle tissue. This debilitating disease is characterized by rapidly progressive weakness, muscle atrophy and twitching, muscle spasticity, difficulty speaking (dysarthria), difficulty swallowing (dysphagia), and difficulty breathing (dyspnea).
Blog Post

Simply Stated: Updates in Neuromuscular Junction (NMJ) Disorders

By Sujatha Gurunathan | March 31, 2025
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Celebrating 25 Years of Impact: MDA’s Wings Over Wall Street Gala Honors Leaders in ALS Research and Advocacy

By MDA Staff | March 16, 2025
at burn with family in workout clothes: from left to right: Bryce Pattison (boyfriend), Ann Lopiccolo (mom-burn ambassador), Grace LoPiccolo (me), Molly Graf (sister), Stephen Graf (brother-in-law- trainer)
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MDA Ambassador Guest Blog: Make Sense? Say Yes!

By Grace LoPiccolo | March 13, 2025
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Quest Podcast: PJ’s Protocol: A Lifesaving Procedure Fueled by Love

By MDA Staff | March 6, 2025
My daughter Capri and I on vacation in New Buffalo Michigan
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MDA Ambassador Guest Blog: Finding My Way to a Sober and Healthy Way of Living

By Cassidy Nilles | March 4, 2025
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Accommodations and Independence: Spreading My Wings on Campus

By Sydney Bryant | March 1, 2025
Blue 3d DNA molecule helix with red and yellow pancreas. Genetic diseases of the pancreas, DNA damage, genetic research concept. Low poly futuristic style. Abstract wireframe light structure. Vector
Blog Post

Simply Stated: Updates in Pompe Disease and Other Glycogen Storage Diseases

By Sujatha Gurunathan | February 27, 2025
Blog Post

MDA’s Development Grants Support Promising Researchers Entering the Neuromuscular Field

By Amy Bernstein | February 26, 2025