Episode 67- A Conversation with Steve Way, Part 2: Medicaid, Self-Advocacy, and the Life You Want

In this episode of Quest Podcast, actor, comedian, and disability advocate Steve Way returns to continue our conversation, this time getting even more personal about his own reliance on home and community-based services and what independence really requires. Steve explains how these services make everything possible, from getting out of bed to doing his job, why the Medicaid cuts some states are facing are so frightening, and his practical tip for making sense of dense budget bills and Medicaid code. He also talks about picking your battles when energy is limited, why keeping your contact information current with your Medicaid office matters more than ever, and how a public speaking career that began at age nine grew into using his platform from Ramy and Furious to raise awareness for the disability community. Steve shares his experiences, expertise, and candid, no-nonsense perspective on self-advocacy, the fight for healthcare, and creating the life you want instead of waiting for it.

Your Guests

Steve Way

Steve Way is a 35-year-old actor, comedian, writer, and speaker. He was born with Ullrich congenital muscular dystrophy and is an advocate for disability awareness. Steve performs stand-up comedy and motivational speeches around the country. He’s known for his role as Steve on the Hulu show Ramy, and can now also be seen as Alden in Liz Meriwether’s Hulu thriller series Furious, alongside Lola Petticrew — a role that’s earned him praise for showing a different, more dramatic side of his range. Off screen, Steve is a strong advocate by writing and speaking publicly on disability justice, healthcare policy, and workers’ rights.

Connect with Steve:

Instagram: @thesteveway
Website: www.thesteveway.com
SubStack: https://thesteveway.substack.com/

Host: Mindy Henderson

Mindy Henderson is MDA’s Vice President of Disability Outreach & Empowerment, Editor-in-Chief of Quest Media, and the host of this podcast. She was diagnosed with spinal muscular atrophy (SMA) type 2, when she was 15 months old and has been a life-long partner to MDA. Mindy is also a professional speaker and author of the book, The Truth About Things That Suck.

Connect with Mindy:

LinkedIn: https://www.linkedin.com/in/hendersonmindy/

Instagram: https://www.instagram.com/mindyhendersonspeaks/

Disclaimer: No content on this site should ever be used as a substitute for direct medical advice from your doctor or other qualified clinician. 

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