In Case You Missed It…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

With so many valuable podcasts, blog articles, and magazine articles available to our audience, chances are that you may have missed one or two pieces of interesting content. Check out the summaries and links below.

In case you missed it… Quest Blogs:

How to Make Vocational Training Affordable

There are many reasons a person with a disability might choose vocational training. One prominent reason: It can provide an affordable, direct pathway to employment, making it an attractive option for anyone interested in entering the workforce. Learn more about resources for pursuing these paths to employment. Read more. 

Simply Stated: Chronic Inflammatory Demyelinating Polyneuropathy (CIPD)

Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare neurological disorder in which the immune system mistakenly attacks the protective covering of peripheral nerves. Learn more about the cause, symptoms, current management, and evolving treatment landscape.  Read more.

In case you missed it… Quest Podcast:

Episode 61 – Pizazz, Purpose, & Periodic Paralysis: How Cienna Ditri Turns Lived Experience into Advocacy

In this Quest Podcast episode, we chat with advocate, social media influencer, and President of the Periodic Paralysis Association (PPA), Cienna Ditri, who lives with periodic paralysis. Cienna shares her diagnostic journey — from childhood soccer games where something felt “off” to finally getting answers — and how living with an unpredictable condition has shaped her into a fierce and passionate self-advocate. And because style is never far from the conversation, she shares her love of adaptive fashion and how personal style has become a powerful form of self-expression and identity. Cienna shares her experiences, expertise, and advice when it comes to resilience, pizazz, and the belief that every one of us — whether in the doctor’s office, on the plane, or in the fitting room — deserves to be assumed competent. Listen here.

In case you missed it…Quest Magazine 2026 Issue 2, Featured Content:

Expert Tips for Handling an Insurance Claim Denial for Gene Therapy

Health insurance denials are all too common for families in the neuromuscular community. Lack of understanding about rare diseases and new therapies can lead to rejected claims for necessary care and potentially lifesaving treatments. Here are proactive steps families can take to improve their chances for approval. Read more.