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Research Study Alert: Survey for Working Caregivers of Children with DMD

Researchers at Rice University are seeking working parents of children living with Duchenne muscular dystrophy (DMD) to participate in a survey about their experiences. The goal is to evaluate whether organizational resources could improve well-being in employed caregivers of children with disabilities.

This study does not involve a new intervention. Enrolled participants will be asked to complete two surveys expected to take a total of 45 minutes. The surveys will include questions about the home caregiving and work experiences.

To be eligible, individuals must meet the following inclusion criteria:

  • Working parents (not self-employed or unemployed) who are caregivers of children with DMD
  • Caregivers must be over 18 years old and children must be younger than 18 years old

Individuals may not be eligible to participate if they meet the following exclusion criteria:

  • Not parents of children with DMD
  • Under 18 years of age
  • Self-employed or unemployed

To inquire about participation, contact the Study Coordinator Felix Wu at email:

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