Caregiving

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Quest Podcast: The People Behind the People: Family Caregiving, Policy, and the Power of Showing Up

By MDA Staff | May 21, 2026
Just me being me after moving here to NY
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MDA Ambassador Guest Blog: ALS is Not the End of My Story

By Monica Torres | May 4, 2026
Blog Post

The Why Behind MDA’s Campaign to Support Family Caregivers

By Shannon Wood and Mark Fisher | April 30, 2026
Front view of medical diverse team pushing emergency stretcher bed in the corridor at hospital
Blog Post

Expert Advice for Preparing for Medical Emergencies with NMD

By Rebecca Hume | April 24, 2026
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MDA Ambassador Guest Blog: Navigating a Busy Life with a Feeding Tube

By Richard Farrell Jr. | March 16, 2026
Charlotte, after coming home from MDA camp, glowing with happiness from the experience
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MDA Ambassador Guest Blog: The Secret to Navigating Life with a Rare Disease? Say Yes.

By Alexa and Charlotte Colella | February 18, 2026
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Blog Post

In Case You Missed It…

By MDA Staff | February 8, 2026
Blog Post

Quest Podcast: Redesigning the Day: Accessibility and Mindset Life Hacks with Jax Cowles

By MDA Staff | January 21, 2026
Danny was named a Dream Maker for the Children's Mercy Hospital Dream Walk IN 2024.
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MDA Ambassador Blog: Steps of Strength: Finding Hope and Community on Our Duchenne Journey

By Katie Brooks | December 29, 2025
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Blog Post

In Case You Missed It…

By MDA Staff | December 8, 2025