Newborn Screening

Two young boys stand with their backs to the camera, staring at the sun setting over the ocean
Blog Post

Newborn Screening & Early Access to Treatment: The Rogers Family SMA Story

By Rebecca Hume | September 18, 2026
Newborn heel prick test and lood puncture, Taking a Heel Blood Sample From Newborn Baby
Blog Post

Families Are Waiting

By Sharon Hesterlee, PhD, President & CEO, Muscular Dystrophy Association | December 23, 2025
Team of professional doctors and nurses examining newborn baby at the hospital. Healthcare and medicine concept.
Blog Post

MDA Advocacy Team Reports Updates in Newborn Screening Legislation

By Paul Melmeyer | September 4, 2025
Blog Post

Behind the Drug: Nusinersen (Spinraza) for SMA

By Maggie Callahan | August 6, 2025
Woman in electric wheelchair waits for consultation with doctor in clinic waiting area. Nurse invites patient with disability on procedures. Medical staff and people in modern medical facility lobby.
Blog Post

Behind the Drug: Risdiplam (Evrysdi) for SMA

By Maggie Callahan | July 31, 2025
A mom and dad hold their daughter and smile at her
Blog Post

My Gene Therapy Journey: The Graves Family

By Rebecca Hume | August 7, 2024
Parents hold their four-year-old daughter, who received Zolgensma for spinal muscular atrophy as an infant.
Blog Post

A Revolutionary Decade for Spinal Muscular Atrophy Therapies

By Chris Anselmo | August 1, 2024
Image of the United States Capitol Building
Blog Post

Federal Appropriations: MDA and Neuromuscular Disease Community Priorities

By Jori Houck | June 13, 2024
Blog Post

All 50 States and DC Implement Spinal Muscular Atrophy Newborn Screening

By Jori Houck | February 23, 2024
The east side of the US Capitol in the early morning.
Blog Post

MDA’s 2024 Advocacy Agenda

By Mark Fisher | January 29, 2024