What’s Ahead for Your 2026 National Ambassador

For over 70 years, MDA’s National Ambassadors have been an intrinsic part of championing for our mission to empower people living with neuromuscular disease and increase care, research, and advocacy efforts. Each year, these Ambassadors share their lived experiences, perspectives, and passion to raise awareness and create positive change for our community. Lily Sander, an…

Quest Podcast: Redesigning the Day: Accessibility and Mindset Life Hacks with Jax Cowles

In this Quest Podcast episode, we chat with public speaker, consultant, and disability advocate, Jax Cowles. Jax shares an honest, thoughtful, and deeply creative conversation about daily life, independence, and problem-solving.  She opens up about how creativity and “life hacking” became essential tools rather than optional skills, and how small, low-cost adaptations can completely transform…

What to Know Before You Start Adaptive Driving

Before you get behind the wheel, know the steps to take for adaptive driving evaluations, equipment, and training.

Clinical Research Alert: Phase 3 Study of Salanersen in Presymptomatic Newborns with SMA

Researchers at Biogen are working to better understand spinal muscular atrophy (SMA) and to evaluate a potentially new treatment for babies before they develop any symptoms. The study Newborns with SMA may be eligible to participate in a phase 3 clinical trial (STELLAR-1) to evaluate the safety and efficacy of the investigational therapy salanersen to treat…

MDA Ambassador Guest Blog: Adapting and Prioritizing a Healthy Lifestyle as I Age

Leslie Krongold is 63 years old and lives in Mendocino, California where she keeps busy with several volunteer and DIY activities including peer counseling, facilitating online support groups, and organizing accessible walk and roll activities. She was diagnosed at 36 years old with myotonic dystrophy type 1 and has been using a walker at home and…

How to Choose a College with a Disability

To find a good college match, students with disabilities should visit campuses to assess their accessibility and inclusiveness.

In Case You Missed It…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. With so many valuable…

Collective Advocacy at the MDA Clinical & Scientific Conference Propels Hope and Possibility

Each year, the MDA Clinical & Scientific Conference brings together clinicians, researchers, industry partners, and community members to share knowledge, spark innovation, and move the field of neuromuscular disease forward. Alongside the scientific sessions and research updates, an equally powerful convening takes place: the annual meeting of the NeuroMuscular Advocacy Collaborative (NMAC). This gathering unites nearly…

MDA Ambassador Guest Blog: Finding My Rhythm Again: The Power of the Chair Workout

Rebecca Gregg has limb-girdle muscular dystrophy (LGMD2B), is a board member of the LGMD Awareness Foundation, and is an MDA Ambassador. She lives in Edmond, OK, with her husband, David, and two daughters, Addison and Lauren. In her free time, she makes jewelry for her Etsy shop. I can still vividly recall the cadence of…

MDA Ambassador Blog: Steps of Strength: Finding Hope and Community on Our Duchenne Journey

Katie Brooks is a mom of two incredible little boys, Dominic and Daniel. She was born and raised in Austin, TX and moved to Atchison, KS to attend college at Benedictine College. She has worked in special education since 2007 and is currently an Early Childhood Special Education Coach for the Shawnee Mission School District in…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Episode 59 – Redesigning the Day: Accessibility and Mindset Life Hacks with Jax Cowles

In this Quest Podcast episode, we chat with public speaker, consultant, and disability advocate, Jax Cowles. Jax shares an honest, thoughtful, and deeply creative conversation about daily life, independence, and problem-solving.  She opens up about how creativity and “life hacking” became essential tools rather than optional skills, and how small, low-cost adaptations can completely transform…

Episode 58- Wrapping Up 2025 with Ira and Lily

In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Lily S. and Ira Walker. Lily is a dedicated advocate finishing her first year as a National Ambassador. She  shares her journey, why she believes it is important to advocate for yourself and others, and what she has learned along the way….

Episode 57- Voices of Inclusion: Celebrating NDEAM with Disability:IN

October is National Disability Employment Month (NDEAM). In this month’s episode of the Quest podcast, we dive into accessibility and inclusion in the workforce with Russell Shaffer, Executive Vice President of Strategy & Programs at Disability:IN. Drawing on his lived experience of vision loss and his years of working in corporate diversity, equity, and inclusion,…