MDA National Ambassador Blog- Letters from Leah: Friendships

Dear Friend, Hello! I hope you are well. Throughout our lives, you and I have met, and will continue to meet, many people who come from different paths. Some become lifelong friends and others drift away. People can either be a blessing or a lesson. At one point in time, everyone has grown apart from…

Tips for Dating a Person with a Disability

If you’ve ever wondered how to approach dating someone with a disability, follow these tips from people in the disability community.

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. With so many valuable…

Billy Moehle’s Family Continues His Legacy of Making an Impact

Billy Moehle lived his life with an undeniable passion for connecting with others and making a difference in this world, especially when it came to supporting efforts and research for neuromuscular disease treatments. His hope for the future, faith in progress, commitment to a cause, genuine love for people, and exuberant joy for life were…

MDA Ambassador Guest Blog: Resetting Priorities: A PhD’s Journey

Dr. Tye Martin is a digital creator, influencer, and disability advocate living with muscular dystrophy. He earned a PhD in Biomedical Engineering from the University of New Mexico in 2019. In 2021, Tye was forced to press a life “reset button” following gallbladder surgery. He has since launched a social media presence on Instagram (@dr.tyedmartin)…

Episode 44- Voting Rights and Accessibility

In this Quest Podcast episode, we chat with Shaun Hill, MDA’s Manager of Public Policy & Advocacy and Mark Fisher, MDA’s Director of Advocacy Engagement. They join us to share the most recent updates and information about accessible voting, your rights when it comes to accessible voting, and information about MDA’s Access the Vote program…

18th Annual MDA Night of Hope Gala Highlights the Byars Family’s ALS Journey and Honors Choate Construction

For nearly 75 years, the Muscular Dystrophy Association (MDA) has led the way in accelerating research, advancing care, and advocating for the support of our families. The MDA Atlanta Night of Hope Gala for ALS Research has become one of the nation’s largest galas in support of amyotrophic lateral sclerosis (ALS) research and has raised…

Empowering Others to Enter the Remote Workforce: Q & A with ENDisabilty Founder Nayeem Amin

Nayeem Amin is working hard to ensure that all individuals living with disabilities know their worth – and their capabilities. The 43-year-old job recruiter and entrepreneur has gained skills and insight on his journey in the professional world while living with limb-girdle muscular dystrophy (LGMD). Nayeem’s mother, sister, and uncle also live with LGMD. He…

Simply Stated: Updates in Charcot-Marie-Tooth Disease (CMT)

Charcot-Marie-Tooth disease (CMT) is a diverse group of inherited disorders that affect movement and sensation in the arms, legs, hands, and feet. People affected by CMT commonly experience lower leg weakness, foot deformities, and reduced sensations, such as the ability to feel heat, cold, and touch. Sometimes fine motor functions of the hands and fingers…

MDA Ambassador Guest Blog: Championing Accessibility as Ms. Wheelchair Kansas: A Journey of Advocacy and Action

Tamara Blackwell, Ms. Wheelchair Kansas 2024, lives in Bel-Aire, KS, where she started an in-home daycare in 2010 that is still in operation. Diagnosed with limb-girdle muscular dystrophy (LGMD), she advocates for accessibility and enjoys creating content on faith and disability awareness.  As Ms. Wheelchair Kansas, my journey has been one of advocacy, education, and action.…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Episode 44- Voting Rights and Accessibility

In this Quest Podcast episode, we chat with Shaun Hill, MDA’s Manager of Public Policy & Advocacy and Mark Fisher, MDA’s Director of Advocacy Engagement. They join us to share the most recent updates and information about accessible voting, your rights when it comes to accessible voting, and information about MDA’s Access the Vote program…

Episode 43- Disrupting the Narrative

In this Quest Podcast episode, we chat with the director, executive producer, and leading character of the movie Good Bad Things: Shane Stanger, Steve Way, and Danny Kurtzman respectively. This trio joins us to share their experiences, expertise, advice and hope when it comes to navigating life and Hollywood, and creating a future that is…

Episode 42- Empowering Individuality with Inclusive Style

In this Quest Podcast episode, we chat with the Executive Director of Open Style Lab (OSL), a non-profit organization that is on a mission to make style accessible for everyone, regardless of cognitive and physical abilities. Yasmin Keats has devoted her career to the core functions of research, education, and informing the public about inclusive…