MDA Holiday Gift and Giving Guide

Our Editor-In-Chief, Mindy Henderson, and our MDA Ambassadors shared some of their favorite products, then looked high and low to curate even more fantastic items that celebrate universal use. Some are adapted for specific purposes, and ALL were chosen with the community of individuals living with neuromuscular disease, and other disabilities, in mind. You’re sure…

International Day of Persons with Disabilities: The State of Neuromuscular Disease Advocacy Around the World

Learn how international organizations advocate for neuromuscular diseases around the world.

Quest for Success: Ira Walker

Ira Walker knows that living independently with a disability takes planning, hard work, determination… and a bit of creativity. The 37-year-old human resources (HR) professional was born with spinal muscular atrophy (SMA) Type II and diagnosed at 12 months old. His enthusiasm for living life to the fullest and his unwavering belief that he can…

What You Should Know About Target Health Numbers

How neuromuscular disease affects target health numbers: blood pressure, blood sugar, cholesterol, and BMI.

How to Make STEM Education Accessible for All: Students Weigh In

As the need for increased diversity in STEM education and careers gains more attention, the Smithsonian Science Education Center (SSEC) is leading the way in making meaningful change in our school systems. The SSEC’s Zero Barriers in STEM Education: Accessibility and Inclusion Program, sponsored by General Motors, focuses on developing opportunities for all students to…

What I am Grateful for This Thanksgiving

Thanksgiving has always been a time of reflection for me. It is a time to come up for air and take stock of life after a hectic start to the fall. This year, I feel a sense of optimism that was missing the last two Thanksgivings due to the pandemic, which threw everything into chaos.…

Research Study Alert: Survey Examining Urinary and Gastrointestinal Symptoms Associated with SMA

Researchers in the Division of Pediatric Neurology at the University of Iowa are seeking people at least four years of age who are living with spinal muscular atrophy (SMA), as well as non-affected people in the same household, to participate in a survey about the urinary and gastrointestinal symptoms of SMA and their impact on overall health.…

Q&A: Understanding Bethlem Myopathy

Bethlem myopathy, also called Bethlem muscular dystrophy, is a rare disease affecting skeletal muscles and connective tissue. Considered a type of congenital muscular dystrophy, it was initially recognized in the 1970s by two Dutch physicians, Jaap Bethlem and George K. van Wijngaarden, and is characterized by slowly progressing muscle weakness and joint stiffness of the…

Top 4 Reader Photos of 2022

Thank you to everybody who entered the 2022 Quest Reader Photo Contest. We received so many great photos from all around the neuromuscular disease community and are excited to share this year’s winner and three runners-up. Best. Selfie. Ever. Congratulations to 2022 Quest Reader Photo Contest winner Sean Wallace, 31, of La Grange, Texas. The…

Finding Creative Ways to Manage Accessibility Challenges

I was once on the go all the time, but in recent years, I have found myself slowing down and trying to pace myself. I do not push the limits on my energy as I once did, such as meeting friends after work, attending events, visiting family, and traveling alone. I am not alone much,…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

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QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Episode 23 – Advocacy, Accessibility, and the DOT

Barriers in travel and the lack of accessible transportation are huge issues for many people living with nueromuscular disease and other physical disabilities. Today, we chat with Kelly Buckland, a disability policy advisor at the U.S. Department of Transportation (DOT), and Michael Lewis, the director of disability policy at MDA. Both guests play active roles…

Episode 22 – Creating an Inclusive Work Environment

Inclusively is a technology centered inclusions solution and employment platform for job seekers with disabilities, mental health conditions, and chronic illnesses. Inclusively’s vision is to create a front door to employment that is open to all people, unlocking the world’s hidden talents in the disability community. In this episode, Sarah Bernard, the co-founder and chief…

Episode 21 – MDA Let’s Play – A Community for Everyone

MDA Let’s Play is a welcoming online gathering place for teens and adults where they play together, forge new friendships, share similar challenges, learn new skills, and sometimes get to hang out with celebrities, sports athletes, and professional creators. More than two million viewers have watched MDA Let’s Play online events on Twitch. I chat…