Hoyer Lifts and Beyond: Choosing the Right Lift Device

With so many types of lifts available, how do choose the right one? Here are tips and considerations to find a transfer lift or lift system that works for you.

MDA’s Origin Story: Grassroots Legacy

As we celebrate MDA’s 75th anniversary, you may be asking, how did this all begin? It’s no surprise that MDA started as a grassroots organization. From the earliest days, our mission has been shaped by the stories and needs of people living with neuromuscular diseases and their families. Founded in 1950 MDA began in 1950…

Life with Lily: Finding My Voice

Hello everyone! I’m so excited to launch my quarterly blog series as your 2025 National Ambassador! This first “Life with Lily” post is deeply personal, a reflection on my journey with Charcot-Marie-Tooth (CMT) disease and an exploration of the nuanced realities of the disability experience. I want to share my story, not just as a…

2024 MDA Advocacy Collaboration Grantees are Working Towards Change

Advocacy for the neuromuscular disease community is just one of the key ways MDA works to support the neuromuscular disease community. To expand our impact and undertake projects of importance to the community, we strive to foster partnerships that advance the ability of people with neuromuscular diseases to live longer, healthier, and more empowered lives.…

Quest Podcast: Navigating Romance with MDA Ambassadors

In this episode of Quest Podcast, we chat with three of our MDA Ambassadors. Nora is a passionate animal advocate and lives with Selenon (SEPN1)-related myopathy (RM). Justin is a disability advocate and an Operations Manager and lives with Limb-girdle Muscular Dystrophy and K.L. is an entrepreneur, poker professional, and influencer living with Spinal Muscular…

MDA Ambassador Guest Blog: More Than a Mold: Building Authentic Love and Relationships

K.L. Cleeton is an entrepreneur, poker professional, and social media influencer committed to empowering individuals to realize their potential. He focuses on startup development and motivates others to overcome their limitations, to achieve more than they imagined they could. He is currently an advisor to Vendoor, an app that enhances efficiency and streamlines operations in…

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. With so many valuable…

International Day of Women and Girls in Science: MDA’s Spotlight on Dr. Kathryn Moss

In recognition of International Day of Women and Girls in Science, the Muscular Dystrophy Association (MDA) is honored and excited to highlight the career and accomplishments of Dr. Kathryn Moss, PhD. International Women and Girls in Science Day, February 11, endeavors to acknowledge and celebrate the invaluable role that women and girls play in accelerating…

MDA Ambassador Guest Blog: The Intersectionality of Identities as a Black Woman Living with a Disability

Gabrielle Runyon is a 22-year-old Kentucky native who currently goes to the illustrious Tennessee State University. She is obtaining her master’s in counseling with a concentration in clinical mental health. She was diagnosed with spinal muscular atrophy (SMA) Type 2 at the age of 1. She loves to sing and plays three instruments.  As I…

Quest Podcast: Living with Intention and Creating a More Beautiful Life

In this Quest Podcast episode, we chat with a certified Life Coach who lives with spinal muscular atrophy. Amber Bosselman has devoted her career to providing living skills for individuals with physical disabilities and helping them find personal fulfillment and develop strategies to improve their lives and reach their goals. Amber joins us to share…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Episode 49- Navigating Romance with MDA Ambassadors

In this episode of Quest Podcast, we chat with three of our MDA Ambassadors. Nora is a passionate animal advocate and lives with Selenon (SEPN1)-related myopathy (RM). Justin is a disability advocate and an Operations Manager and lives with Limb-girdle Muscular Dystrophy and K.L. is an entrepreneur, poker professional, and influencer living with Spinal Muscular…

Episode 48- Living with Intention and Creating a More Beautiful Life

In this Quest Podcast episode, we chat with a certified Life Coach who lives with spinal muscular atrophy. Amber Bosselman has devoted her career to providing living skills for individuals with physical disabilities and helping them find personal fulfillment and develop strategies to improve their lives and reach their goals. Amber joins us to share…

Episode 47- Wrapping Up 2024 with Leah and Ira

In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Leah Z., and Ira Walker. Leah is a dedicated advocate finishing her second year as a National Ambassador. Leah shares her journey and why she believes it is important to advocate for yourself and others. As Ira wraps up his first year…