Clinical Research Alert: Phase 3 Study of RGX-202 in Boys with DMD

REGENXBIO Inc. is enrolling boys living with Duchenne muscular dystrophy (DMD) to participate in a phase 3 clinical trial to evaluate the safety, tolerability and efficacy of the investigational gene therapy RGX-202 to treat DMD. RGX-202 is designed to produce a novel microdystrophin protein to replace the missing dystrophin protein in the muscles of males…

Simply Stated: MG Therapeutic Landscape

Myasthenia gravis (MG) is a chronic neuromuscular disease characterized by muscle weakness that worsens after activity and improves after rest. Most people with MG experience one of two forms, ocular or generalized. In ocular MG, weakness is limited to the muscles that move the eyes and eyelids. In generalized MG (gMG), weakness may affect eye…

MDA Ambassadors Share Tips for Flying with Power Wheelchairs and Medical Equipment

Looking for tips for travel with a power wheelchair or medical equipment? Experienced travelers with disabilities share their airplane hacks.

MDA Ambassador Guest Blog: Finding Passion & Purpose in Art

Jennifer Lane is a wife and mother of three grown children and lives in Alabama. She is involved in church ministry and is an advocate and Ambassador for the MDA. She was diagnosed with LGMD 1C in 2022, after 13 years of searching for a diagnosis. Jennifer is a published artist, loves going to concerts,…

Your Guide to Genetic Testing for Neuromuscular Diseases

Genetic counselors answer frequent questions about genetic testing: How much does genetic testing cost? Should you be tested?

Insights by Ira: Let’s Get Active This Summer!

It’s the most wonderful time of the year! The holiday’s season already? No! Summertime! That’s right! The time of year when the days are long and hot, the nights are warm and filled with fireflies, and the atmosphere is prime for active living. And for those in the neuromuscular disease community, summertime is the perfect…

MDA Ambassador Guest Blog: How Making an Impact Renewed My Purpose After FSHD Diagnosis

Ranae Beeker, who is in her late 60s, has found her greatest joy in her roles as a mother to Alethea and Gavin, and as a Gramma to Eilif and Zuzu. Ranae’s journey to diagnosis was not without its challenges, as she underwent three misdiagnoses before finally finding answers at Johns Hopkins. where doctors confirmed…

The Joys (and Lessons) of Fatherhood from MDA Ambassadors

As every father knows, parenthood is an incredible journey filled with joy, challenges, victories, growth, and love. For dads living with a disability, raising children sometimes requires extra patience, resilience, and adaptability. In beautiful synchronicity, those very traits are often strengthened through daily life with a disability and serve as an asset to parenting, providing…

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. With so many valuable…

Quest Podcast: Invisible People: Making the Rare Seen

In this Quest Podcast episode, we chat with a former pharmacist turned singer/songwriter who lives with Generalized Myasthenia Gravis. Dania Quill has devoted her time and expertise to create inclusive spaces for those with disabilities and deliver advice, inspire action, and make us feel closer through song while sharing stories of resilience and positivity.  While…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Episode 54- Service Dogs, Inc. – Paws with a Purpose

In this Quest Podcast episode, we chat with a former attorney who left her law practice to devote her time to building Service Dogs, Inc. Sheri Soltes founded Service Dogs, Inc. in 1988 on the concept of using dogs rescued from animal shelters. Under her guidance, Service Dogs, Inc. has led the industry in combining…

Episode 53- Invisible People: Making the Rare Seen

In this Quest Podcast episode, we chat with a former pharmacist turned singer/songwriter who lives with Generalized Myasthenia Gravis. Dania Quill has devoted her time and expertise to create inclusive spaces for those with disabilities and deliver advice, inspire action, and make us feel closer through song while sharing stories of resilience and positivity.  While…

Episode 52- Defending Medicaid with the MDA Advocacy Team

In this Quest Podcast episode, we chat with Joel Cartner, MDA’s Director of Access Policy, and Jori Houck, MDA’s Manager of Advocacy Engagement. They join us to share the most recent updates and information about Medicaid benefits, current legislative efforts and what MDA’s Advocacy Team is doing to protect those efforts, and how you can…