MDA on the Hill 2023: Advocates Return to Washington, D.C.
We are back in person (and better than ever!) It’s been over three years since MDA’s grassroots advocates traveled to Washington D.C. to meet in person with their lawmakers. Despite the pandemic-caused hiatus, advocates returning to the Nation’s capital this month arrived with renewed passion and purpose. On May 9 and 10th, MDA grassroots volunteers…
The Trans New Hampshire Bike Ride: One Man’s Road to Advocacy
ESPN Digital Producer Nevin Steiner has found his life’s mission in sharing the message that “it’s not what you can’t do in this life, but what you can.” Diagnosed with Becker muscular dystrophy (BMD) at six years old, Nevin’s accomplishments are a testament to that message. Nevin played varsity tennis in high school, graduated from…
MDA Ambassador Guest Blog: Taking Care of Our Mental Health
I feel like our mental health is something we don’t discuss enough. I want to share how Muscular Dystrophy has affected my mental health, because honestly speaking, there have been some very low times. Living with a physical disability is difficult. Knowing it is something that you can’t take medicine for to make it better…
How to Feel Safe in Your Home
Choose the right home security system to make people with neuromuscular diseases and other disabilities safer in their homes.
Drink One for Dane: A Legacy of Love
Anyone who has had the opportunity to visit one of the over 700 Dutch Bros locations can agree that Dutch Bros knows good coffee. But Dutch Bros serves their community much more than just a morning cup of joe, especially the neuromuscular community. Started by brothers Travis and Dane Boersma in 1992, the drive-thru coffee…
Talking About a Diagnosis Is a Personal Decision
When considering telling friends and family about a diagnosis, here are best practices and how to handle questions.
Teen Inspires His Uncles to Fundraise For MDA
Two uncles find creative ways to fundraise for MDA and support their nephew with Becker muscular dystrophy (BMD).
A Musical Spreads Muscular Dystrophy Awareness
Actor, director, and composer Jess Westman explains why he made a musical about living with muscular dystrophy.
Tips for Adults With Disabilities Who Want to Live on Their Own
Adults with disabilities who want to live independently are finding that community services and self-advocacy can help them get their own place.
How an HR Professional with SMA Powered Her Career
Leticia Tatum did not let her neuromuscular disease or disability hold her back from pursuing a successful career.
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.
The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.
Episode 29 – Expert Accessible Travel Tips for Your Next Vacation
Summer is around the corner! In this Quest Podcast episode, we chat with two renowned travel writers who live with physical disabilities. Sylvia Longmire, creator of the Spin the Globe accessible travel blog, and Cory Lee, creator of the Curb Free with Cory Lee travel blog, join us to share their experiences, expertise, and advice…
Episode 28 – There is No Such Thing as Normal
Megan DeJarnett is an author, speaker, disability DEI educator, and inclusion advocate. Megan lives with SMA and is the organizational founder of No Such Thing, a company with a mission to help others redefine purpose by removing defining labels. Author of the children’s books, “No Such Thing as Normal” and “Lovely as Can Be”, Megan…
Episode 27 – The Changing Landscape of Neuromuscular Care
As new treatments, cutting edge research, and a better understanding of genetic sequencing and mutations bring innovative change to the treatment landscape for neuromuscular disease, understanding your options and accessing care is more important than ever. We sit down with Dr. Matthew Harms, a neuromuscular neurologist and neurogenetics expert, to discuss what these changes mean…