MDA Ambassador Guest Blog: More Than a Mold: Building Authentic Love and Relationships

K.L. Cleeton is an entrepreneur, poker professional, and social media influencer committed to empowering individuals to realize their potential. He focuses on startup development and motivates others to overcome their limitations, to achieve more than they imagined they could. He is currently an advisor to Vendoor, an app that enhances efficiency and streamlines operations in…

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. With so many valuable…

International Day of Women and Girls in Science: MDA’s Spotlight on Dr. Kathryn Moss

In recognition of International Day of Women and Girls in Science, the Muscular Dystrophy Association (MDA) is honored and excited to highlight the career and accomplishments of Dr. Kathryn Moss, PhD. International Women and Girls in Science Day, February 11, endeavors to acknowledge and celebrate the invaluable role that women and girls play in accelerating…

MDA Ambassador Guest Blog: The Intersectionality of Identities as a Black Woman Living with a Disability

Gabrielle Runyon is a 22-year-old Kentucky native who currently goes to the illustrious Tennessee State University. She is obtaining her master’s in counseling with a concentration in clinical mental health. She was diagnosed with spinal muscular atrophy (SMA) Type 2 at the age of 1. She loves to sing and plays three instruments.  As I…

Quest Podcast: Living with Intention and Creating a More Beautiful Life

In this Quest Podcast episode, we chat with a certified Life Coach who lives with spinal muscular atrophy. Amber Bosselman has devoted her career to providing living skills for individuals with physical disabilities and helping them find personal fulfillment and develop strategies to improve their lives and reach their goals. Amber joins us to share…

The Complex Beauty of the Unexpected

Abby Dreyer is an honors student at Eastern Connecticut State University who lives with spinal muscular atrophy (SMA). She enjoys learning other languages, trying new things, writing, watching movies, and staying active. Even though she was born and raised in the smallest state in the country, Rhode Island, she has always had big ideas and is…

Simply Stated: RNA-Based Therapies in Development for Myotonic Dystrophy

Myotonic dystrophy (DM) is a type of muscular dystrophy that affects about 1 in 8,000 people worldwide. DM is characterized by progressive muscle loss and weakness, but can also affect many organs in the body. The non-muscle-related symptoms of DM are variable and often differ from those of other muscular dystrophies. This makes the journey…

Championing for Change: MDA’s 2025 Advocacy Agenda

With a new Congress and Administration in office, it’s safe to say that 2025 is going be a year full of change. But what remains consistent is MDA’s commitment to advocating for public policy that will empower the neuromuscular community. As we begin a new year, check out MDA’s Advocacy Agenda! Unfinished 2024 business Unfortunately,…

Getting to Know Your 2025 MDA National Ambassadors

MDA’s Ambassadors are pivotal to our mission: empowering people living with neuromuscular disease to live longer, more independent lives. We strive for our mission through care, research, and advocacy. Our Ambassadors are incredible partners who volunteer their time, share their stories, raise awareness, and shine a light on all that MDA does and means to…

Breaking Barriers in Higher Education: My Journey as a Student with Muscular Dystrophy

Serena Desiderio, from Gilbert, Arizona, is a senior at the University of Arizona studying Physiology and Medical Sciences with an emphasis in Exercise Physiology and a minor in Psychology. Diagnosed with limb girdle muscular dystrophy at 14 years old, she’s using her experiences and education to pursue a career in physical therapy, hoping to support…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Episode 48- Living with Intention and Creating a More Beautiful Life

In this Quest Podcast episode, we chat with a certified Life Coach who lives with spinal muscular atrophy. Amber Bosselman has devoted her career to providing living skills for individuals with physical disabilities and helping them find personal fulfillment and develop strategies to improve their lives and reach their goals. Amber joins us to share…

Episode 47- Wrapping Up 2024 with Leah and Ira

In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Leah Z., and Ira Walker. Leah is a dedicated advocate finishing her second year as a National Ambassador. Leah shares her journey and why she believes it is important to advocate for yourself and others. As Ira wraps up his first year…

Episode 46- Creating Beauty from your Dreams with Shakiira Rahaman

In this Quest Podcast episode, we chat with the Kira Cosmetics founder and entrepreneur, Shakiira Rahaman. Shakiira, who lives with muscular dystrophy. founded her make-up line in 2019 after a life changing event. She joins us to share her experiences, expertise, and advice when it comes to starting her own business, navigating life with a…