Simply Stated: Muscle Biopsies

A muscle biopsy is a surgical procedure in which one or more small pieces of muscle tissue are removed for microscopic examination and biochemical or genetic testing. The procedure, sometimes used in the diagnosis of a muscle disorder, is considered “minor” surgery and is usually performed under local anesthetic. Muscle biopsy used to be more…

All 50 States and DC Implement Spinal Muscular Atrophy Newborn Screening

2024 has already brought several exciting developments throughout MDA’s advocacy priorities and policy areas, but one of the biggest victories for the MDA community so far this year is the full implementation of routine screening for spinal muscular atrophy (SMA) in all 50 U.S. states and Washington, DC. This means that every child born with…

MDA Guest Ambassador Blog: How MDA Summer Camp Shaped Me

Juliette is 17 years old and lives in Florida. She is a senior in high school and will be attending FAU next fall to begin her career in social work. Juliette has Charcot-Marie-Tooth. She uses leg braces and has been an ambulatory wheelchair user since diagnosis. Juliette enjoys being involved in local theater and reading…

Simply Stated: Updates in LAMA2 Muscular Dystrophy

LAMA2-related muscular dystrophy (LAMA2-RD) is a rare neuromuscular condition characterized by proximal (close to the body center), axial (head and trunk), and facial weakness, elevated creatine kinase (CK), central and peripheral nervous system involvement, and respiratory insufficiency. LAMA2-RD is a spectrum disorder that is generally divided into two main phenotypes: the more severe, early-onset form…

Episode 38: Love Made Simple with Alexa and Jacqueline Child of DateAbility

In this Quest Podcast episode, we chat with the founders of DateAbility, a dating application geared towards individuals with disabilities and chronic illnesses. Alexa and Jacqueline Child have devoted their time to create a safe and accepting space that allows individuals to create meaningful connections.  Their goal is to make love accessible for everyone. These…

Disability Benefits and the Marriage Penalty

Getting married may mean losing vital disability benefits. Here’s what’s being done to erase the marriage penalty.

Raising Resilient Kids with Neuromuscular Diseases

People living with neuromuscular diseases share their upbringing and how their parents instilled resilience from a young age.

Former MDA Summer Campers Reunite After 14 Years

Former MDA Summer Campers get together after 14 years to reunite and continue their lasting connections.

ReelAbilities Co-Founder Talks Representation on the Big Screen

ReelAbilities Film Festival co-founder Isaac Zablocki talks about disability representation in the entertainment industry.

How MDA Can Support You

Read about the many ways MDA engages with and supports families in the neuromuscular disease community.

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Episode 38: Love made simple, with Alexa and Jacqueline Child of DateAbility

In this Quest Podcast episode, we chat with the founders of DateAbility, a dating application geared towards individuals with disabilities and chronic illnesses. Alexa and Jacqueline Child have devoted their time to create a safe and accepting space that allows individuals to create meaningful connections.  Their goal is to make love accessible for everyone. These…

Episode 37- How to find Meaning and Fulfillment with Isaac Banks

In this Quest Podcast episode, we chat with one of Muscular Dystrophy Association’s Ambassadors, Isaac Banks about finding fulfillment in our lives as we skyrocket into 2024. As a certified public speaker, author, and podcaster, he has devoted his career to providing equity and inclusion for others and finds personal fulfillment through his faith and…

Episode 36- Wrapping Up 2023 with Leah and Amy

In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Leah Z., and Amy Shinneman. Amy feels that connecting and sharing her story with others through MDA has been life changing. Leah is a dedicated advocate that feels it is important to advocate for yourself and stand up for those that are…