What is the MDA Resource Center? An Executive Q&A

What is an MDA Care Center?  I’m having symptoms of a muscle disease and I’m not sure what to do or who to talk to.  My child was diagnosed with a neuromuscular disease and is starting school this fall, and I am unsure of how to work with his school to get the accommodations he…

Back-to-School Beauty Hacks with Wheelchair Barbie

Madison Lawson is passionate about hair, make-up, and fashion, and the importance of inclusivity in the fashion and beauty industry. Born with spinal muscular atrophy (SMA), she became interested in defining her own beauty at a young age – using fashion as an opportunity to express herself, build confidence, and draw attention to her style…

Clinical Trial Alert: Phase 2 Study of Oral Ifetroban in Individuals with DMD

Researchers at Cumberland Pharmaceuticals Inc. are seeking boys and men living with Duchenne muscular dystrophy (DMD) to participate in a phase 2 clinical trial to evaluate the safety, and efficacy of oral ifetroban to treat the heart disease associated with DMD. Oral ifetroban is being evaluated for the ability to protect the heart from scarring and…

August is National Make-a-Will Month

When most people think of August, they think of the end of summer and back to school, but did you know that August is also National Make-a-Will month?  Whether you’re 18 or 80, it’s a great time to to prepare for your future and plan ahead.  And it’s easier than you think!  Your Will =…

Quest for Success: Jason Morgan

As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: “Quest for Success”. Success looks different to everyone and this monthly blog details the different paths that individuals with neuromuscular disease have taken to reach their potential and the steps…

National Ambassador Shares the Value of Friendship

It’s an honor to be able to share my thoughts on friendship and what that means to me to celebrate friendship day! For those of you who have been around long enough to remember the popular Dionne Warwick song, “That’s What Friends Are For”, you may remember the chorus which says, “Keep smiling, keep shining,…

Navigating School Supports with MDA

As the days become longer and the fireflies come out to play, it might be hard to start thinking about the new school year right around the corner.  But when it comes to preparing for your child to have the supports that he or she needs for a fantastic school year, a little bit of…

Trans-NH Bike Ride’s 35th Anniversary Event Makes an Impact

The Muscular Dystrophy Association (MDA) today announced that the 35th Annual Trans New Hampshire Bike Ride (TNHBR) held on June 25, starting and ending at the Portsmouth Senior Center in Portsmouth, New Hampshire, raised over $98,000 for the organization’s mission, with funds still cycling in. The event featured over 40 in-person riders as well as support…

The Smart Way to Use Savings Accounts

Money kept in savings accounts pulls double duty: It’s accessible to address urgent, unexpected expenses, and it’s also a key component of a long-term investment strategy. In the face of a sudden job transition or a vehicle breakdown, for example, savings can provide flexibility and resilience. For people living with neuromuscular diseases, “Every day won’t…

Top 5 Reasons to Attend MDA’s Virtual Summit & Hill Day

We’re back! After a 3-year hiatus, advocates are going back to Capitol Hill, but this time virtually. We’re excited to announce that the MDA Advocacy Institute: Virtual Summit and Hill Day will take place on September 28th and 29th, and we hope you can join us! The Virtual Summit & Hill Day is the perfect way to…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Episode 20 – Lights, Camera, Action – and Accessibility: Part 3

As the third podcast in our accessibility in the entertainment world, we sit down with Jonathan Lengel. Jonathan is an actor, singer, and performer who lives with a rare form of congenital muscular dystrophy. Jonathan became active in theater as a kindergartener and was recently discovered as part of a worldwide casting call to star in…

Episode 19 – Lights, Camera, Action – and Accessibility: Part 2

James Ian is a singer, songwriter, multi-instrumentalist, actor and writer who lives with spinal muscular atrophy (SMA). His song “Spaces” has over 744,000 views on YouTube and highlights the lives of others living with SMA. He worked with Genentech, a three-time Grammy nominated producer, and an executive at Universal Music to create this incredible song…

Episode 18 – Lights, Camera, Action – and Accessibility: Part 1

Born with a rare form of neuromuscular disease, Leah Zelaya faced a host of challenges including medical claims that she would possibly never walk. In spite of these obstacles, Leah learned to believe in her abilities. Through strenuous physical therapy and determination, she is now able to ambulate with forearm crutches. Leah has taken that…