A Q&A Look into the Planning and Upcoming Topics of the 2025 MDA Clinical & Scientific Conference

The 2025 MDA Clinical & Scientific Conference is coming up! Each year, MDA hosts visionary leaders in neuromuscular disease research and treatment, creating an opportunity for the research and medical communities to share and learn more about groundbreaking studies, innovative advancements in care, and best clinical practices. This year’s event, to be held in Dallas,…

MDA National Ambassador Blog-Insights by Ira: A Journal of Gratitude

During the recent pandemic, I created a written nest of emotional solace by constructing a daily gratitude journal.  This was a journal that I diligently spent time each evening before bed documenting the various articles in my life that I was most grateful for.  Through completing this daily exercise, I can conclusively concur a notion…

Five Things You Should Know About the SSA’s Changes to Supplemental Security Income

This year, the Social Security Administration (SSA) announced several important changes to how it calculates Supplemental Security Income (SSI) benefits. SSI provides monthly cash payments to many adults and children with disabilities. For members of the neuromuscular disease community receiving SSI, these benefits are critical to meeting basic needs, including shelter, food, clothing, and care.…

Simply Stated: Updates in Amyotrophic Lateral Sclerosis (ALS)

Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disorder that causes muscle weakness, disability, and eventually death, often within three to five years from when the symptoms first appear. In ALS, motor neurons (nerve cells that control muscle cells) are gradually lost. As a result, the muscles they control become weak and then nonfunctional, leading to…

Episode 45- Making Space and Creating Pathways with Keely Cat-Wells

In this Quest Podcast episode, we chat with world-renowned advocate, entrepreneur, public speaker and educator, Keely Cat-Wells. She devotes her time and expertise to creating education and employment opportunities and inclusive spaces for those with disabilities – and delivers advice and inspires action while sharing stories of resilience and positivity. Keely is the founder and…

Ambassador Guest Blog: Advocating for Change at Hill Day

Lily S. is a 17-year-old living with Charcot-Marie-Tooth (CMT) disease. Her passions include disability advocacy, menstrual justice advocacy, and education. Lily lives just outside of Charlotte, NC, where she enjoys traveling with her family, a good cup of coffee, and spending time with her dogs. My recent trip to Washington, D.C. to advocate for disability rights was an…

Passion and Purpose Unite for Certified Disability-Owned Business Owner and Branding Manager

For Jeremy Siegers, the key to success is combining passion and purpose. What started as a hobby for the 43-year-old living with limb-girdle muscular dystrophy (LGMD) has grown into a lucrative and fulfilling career. As a certified disability-owned business owner, he wants others in the disability community to know that their talents, skills, and gifts…

National Disability Employment Awareness Month (NDEAM) Panel for Jobseekers and Employers

In this Quest webinar, we chat with esteemed panelists including: Donna Bungard, Senior Marketing Accessibility Program Manager, Indeed Nicholas Iadevio, Jr., Vice President Diversity, Equity and Inclusion, L’Oréal Stephane Leblois, MA, Chief Community and Programmes Officer, The Valuable 500 Theo Braddy, Executive Director, National Council on Independent Living They join us to share their experiences,…

MDA Ambassador Guest Blog: From Deals to Disabilities: How a Serial Entrepreneur is Innovating Accessibility

Naji Nizam is a 28-year-old New York-based serial entrepreneur, real estate developer, and disability rights advocate with a neuromuscular condition called Centronuclear Myopathy. He has conducted millions in real estate transactions globally and advised on countless accessibility projects, including NYC’s Penn Station. Some fun facts about Naji are: he is fluent in three languages, played…

Domestic Violence Awareness Month: Know Your Risk and Resources

People with disabilities are at higher risk for all types of domestic abuse. Learn how to recognize abuse and what to do about it.

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Episode 45- Making Space and Creating Pathways with Keely Cat-Wells

In this Quest Podcast episode, we chat with world-renowned advocate, entrepreneur, public speaker and educator, Keely Cat-Wells. She devotes her time and expertise to creating education and employment opportunities and inclusive spaces for those with disabilities – and delivers advice and inspires action while sharing stories of resilience and positivity. Keely is the founder and…

National Disability Employment Awareness Month (NDEAM) Panel for Jobseekers and Employers

In this Quest webinar, we chat with esteemed panelists including: Donna Bungard, Senior Marketing Accessibility Program Manager, Indeed Nicholas Iadevio, Jr., Vice President Diversity, Equity and Inclusion, L’Oréal Stephane Leblois, MA, Chief Community and Programmes Officer, The Valuable 500 Theo Braddy, Executive Director, National Council on Independent Living They join us to share their experiences,…

Episode 44- Voting Rights and Accessibility

In this Quest Podcast episode, we chat with Shaun Hill, MDA’s Manager of Public Policy & Advocacy and Mark Fisher, MDA’s Director of Advocacy Engagement. They join us to share the most recent updates and information about accessible voting, your rights when it comes to accessible voting, and information about MDA’s Access the Vote program…