MDA Engage Symposiums are Back in Full Swing

MDA Engage Symposiums returned in 2023 offering the neuromuscular disease community an opportunity to connect with one another in person and learn directly from expert clinicians about topics related to their diagnosis and daily living. Over 200 people attended the reestablished Engage Symposiums held in Stanford, CA, Princeton, NJ, and Minneapolis, MN last year. Each…

My Gene Therapy Journey: The Bafus Family

The Bafus family’s YouTube Channel started as a means to provide updates with close friends and family regarding their two sons’ Duchenne muscular dystrophy (DMD)), but it has since evolved into a powerful platform to share their gene therapy journey – offering insight and support to other families.  Bryan and Jada Bafus’s two sons, Mason…

Episode 43- Disrupting the Narrative

In this Quest Podcast episode, we chat with the director, executive producer, and leading character of the movie Good Bad Things: Shane Stanger, Steve Way, and Danny Kurtzman respectively. This trio joins us to share their experiences, expertise, advise and hope when it comes to navigating life and Hollywood, and creating a future that is…

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. With so many valuable…

Living Independently with a Disability

Tips, tricks, tools, and products from experts and members of the neuromuscular disease community to help you live independently with a disability.

MDA Ambassador Guest Blog: Celebrating and Supporting LGBTQ+

Rigo is an artist who studied at the Art Institute of Dallas. Although he has dealt with many challenges due to living with a neuromuscular disease, he likes to focus on what’s most important to him. He wants his artwork to advocate for people with disabilities and for it to tell others that things are…

Simply Stated: Updates in GNE Myopathy

GNE myopathy is an inherited neuromuscular disease (NMD) characterized by progressive atrophy (thinning) of the skeletal muscles. GNE myopathy was previously called hereditary inclusion body myopathy (HIBM) or Nonaka myopathy in some cases, until discovery of the genetic cause of the disease proved that all of these conditions were actually the same condition caused by…

MDA Ambassador Guest Blog: Embracing Inclusive Venues and Adventures

Justin Lopez is 30 years old. He currently lives in Toledo, Ohio, but originates from Farmington Hills, Michigan. Justin was diagnosed with Limb-girdle Muscular Dystrophy (LGMD 2B) at the age of 13. Justin is a son, brother, husband, and father. He has been an Operations Supervisor in the tech industry for the past six years.…

Find Accessible Beaches for Summer Fun

Beach destinations are recognizing that people with disabilities want to travel to accessible beaches. Here’s how to plan a wheelchair-friendly beach vacation.

Celebrating Recent Significant Milestones in Disability Rights

Over the past few months, we’ve witnessed two significant milestones in the history of disability rights law. In May, we were invited to attend an announcement marking the finalization of rulemaking to update Section 504 of the Rehabilitation Act of 1973. This was the first time the legislation had been updated in the 50 years…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Episode 43- Disrupting the Narrative

In this Quest Podcast episode, we chat with the director, executive producer, and leading character of the movie Good Bad Things: Shane Stanger, Steve Way, and Danny Kurtzman respectively. This trio joins us to share their experiences, expertise, advise and hope when it comes to navigating life and Hollywood, and creating a future that is…

Episode 42- Empowering Individuality with Inclusive Style

In this Quest Podcast episode, we chat with the Executive Director of Open Style Lab (OSL), a non-profit organization that is on a mission to make style accessible for everyone, regardless of cognitive and physical abilities. Yasmin Keats has devoted her career to the core functions of research, education, and informing the public about inclusive…

Episode 41- Courage Kindled: A Hero’s Unbreakable Spirit

In this Quest Podcast episode, we chat with a retired US Army veteran and firefighter, Ken Sutcliffe and his wife, Andi. He has devoted his career to saving lives but now he must also fight for his own after being diagnosed with Amyotrophic lateral sclerosis, or ALS, also known as Lou Gehrig’s Disease, He and…