Letters from Leah: “Fin” (A Farewell Note)

Dear Friends, What an honor it has been to be one of MDA’s National Ambassadors! I will never forget all the amazing connections and friendships I have made along this journey. There have been many impactful pivotal moments in my time as an ambassador. I can’t believe how fast these two years have gone by.…

Ambassador Guest Blog: Cooking Tips & Tricks (Just in Time for the Holidays)

Barbara Ochoa is an animal lover and skilled home chef who lives in California. She loves to spend time with her husband and adult children on their farm and stay active in her community. She and two of her children live with myotonic dystrophy (DM) and her experience as patient and caretaker has made her…

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. With so many valuable…

Get Cozy with Accessibility and Independence This Winter

With colder temperatures, variable weather conditions for travel, and shorter hours of daylight each day, winter often brings with it the season of spending more time staying inside and cozying up at home. And rest and relaxation are key elements to maintaining balance during the busy holidays – and throughout the year. These products and…

MDA CEO and President Dr. Wood Reflects on 2024: A Year of Milestones and Momentum

Hello MDA Families and Friends, As we approach the close of 2024, it’s a moment for all of us at the Muscular Dystrophy Association (MDA) to reflect on the profound impact we’ve made together with our partners, supporters, and families. This year has been marked by extraordinary progress in our mission, strengthened through connection and…

Episode 47- Wrapping up 2024 with Leah and Ira

In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Leah Z., and Ira Walker. Leah is a dedicated advocate  finishing her second year as a National Ambassador. Leah shares her journey and why she believes it is important to advocate for yourself and others. As Ira wraps up his first year…

A Year of Progress: Looking Back on the 2024 Changes in Air Travel Accessibility

As 2024 draws to a close, it is worth reflecting on the progress MDA and the disability community achieved this year towards air travel accessibility. From the inclusion of important accessibility provisions in the Federal Aviation Administration (FAA) reauthorization to unprecedented fines on airlines for violating the rights of passengers with disabilities who use mobility…

Simply Stated: Therapeutic Strategies to Treat DMD

Duchenne muscular dystrophy (DMD) is a rare genetic disorder caused by mutations in the dystrophin gene that lead to loss of the dystrophin protein. People with DMD experience progressive degeneration and weakness of the body’s voluntary muscles, primarily the skeletal muscles that control movement. In later stages of disease, the heart and respiratory muscles may…

MDA Ambassador Guest Blog: Embracing Resilience and Navigating Life’s Unexpected Turns

Sorayda Rivera is a 37-year-old, first-generation Mexican American woman from Texas living with spinal muscular atrophy (SMA) type 3. Diagnosed at age three, Sorayda has defied expectations, building a life filled with purpose and resilience. She holds an associate degree in Public Relations and Advertising and a bachelor’s degree in Mass Communication with a minor…

Understanding Creatine Kinase Levels and Testing

Learn more about creatine kinase levels and testing, as well as how this data is used for neuromuscular disease diagnoses.

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Episode 47- Wrapping Up 2024 with Leah and Ira

In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Leah Z., and Ira Walker. Leah is a dedicated advocate  finishing her second year as a National Ambassador. Leah shares her journey and why she believes it is important to advocate for yourself and others. As Ira wraps up his first year…

Episode 46- Creating Beauty from your Dreams with Shakiira Rahaman

In this Quest Podcast episode, we chat with the Kira Cosmetics founder and entrepreneur, Shakiira Rahaman. Shakiira, who lives with muscular dystrophy. founded her make-up line in 2019 after a life changing event. She joins us to share her experiences, expertise, and advice when it comes to starting her own business, navigating life with a…

Episode 45- Making Space and Creating Pathways with Keely Cat-Wells

In this Quest Podcast episode, we chat with world-renowned advocate, entrepreneur, public speaker and educator, Keely Cat-Wells. She devotes her time and expertise to creating education and employment opportunities and inclusive spaces for those with disabilities – and delivers advice and inspires action while sharing stories of resilience and positivity. Keely is the founder and…