The Hidden Power of Self-Care in Caregiving

Four family caregivers share the everyday ways they incorporate self-care into their lives, so they can care for their loved ones.

Meet Our 2025 MDA Quest Photo Contest Winners

People living with neuromuscular diseases shared their meaningful moments in the Quest Media photo contest. Here are this year’s winner and three runners-up.

A Lifetime of Learning: From college to a Career in Disability Advocacy

Naomi Hess pursues a lifetime of education in college and beyond to learn about her interests and progress in her career.

New Year, New Financial Plan: Tips to Get Your Budget Back On Track

Follow these tips to save money in your budget when you’re balancing health and disability-related expenses.

Understanding Spinal-Bulbar Muscular Atrophy

Q&A with an expert on spinal-bulbar muscular atrophy (SBMA), or Kennedy’s disease

From Classroom to Courtroom: How Eric Arnold Navigated Accessibility in His Education and Career

How Eric Arnold, an attorney living with spinal muscular atrophy (SMA), built an accessible career and lives independently.

Progress Now: Immunotherapy Study Recruiting, Drug Cleared for Expanded Access, and More

Tracking research updates and breakthroughs that help accelerate treatments and cures across MDA diseases

Say Yes to Gene Therapy? Factors to Consider When Gene Therapy Is an Option

When you have access to gene therapy for a neuromuscular disease, weigh the risks and benefits for yourself or your child in your decision-making.

Financial Education and Planning Help You Take Charge of Your Financial Future

From strict Medicaid asset limits to frequent medical expenses to underpublicized public programs, families with disabilities can feel like they are walking a financial tightrope trying to balance it all. “Financial planning can be stressful for anyone, but when you add a neuromuscular disease to the equation, it can feel especially daunting,” says Marissa Lozano,…

7 Essential Tips for Family Caregivers to Avoid Common Injuries

Learn expert-backed strategies for family caregivers to prevent injuries, protect their well-being, and care for their loved one safely.

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Episode 57- Voices of Inclusion: Celebrating NDEAM with Disability:IN

October is National Disability Employment Month (NDEAM). In this month’s episode of the Quest podcast, we dive into accessibility and inclusion in the workforce with Russell Shaffer, Executive Vice President of Strategy & Programs at Disability:IN. Drawing on his lived experience of vision loss and his years of working in corporate diversity, equity, and inclusion,…

Episode 56- Precision Medicine: Mapping the Genetic Code for New Treatments

In this Quest Podcast episode, we chat with Dr. Stephan Züchner, Dr. Conrad “Chris” Weihl, and the Interim Chief Research Officer of the Muscular Dystrophy Association, Dr. Angela Lek.  Leaders in the field of genetic mapping, all three have devoted their time and expertise to research and treatments for neuromuscular diseases.  Their goal is to…

Episode 55- Unpacking Disability Pride: Voices from the MDA Community

In this Quest Podcast episode, we chat with MDA Ambassadors, Payton Rule, Fred Graves and former MDA National Ambassador Amy Shinneman. Payton shares a journey of transformation from self-doubt to pride, emphasizing how important community has been in helping her feel seen and valued.  While Fred offers a perspective rooted in resilience and advocacy, discussing…