• In Case You Missed It…

    Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. With so many valuable…

  • Your Voice, Your Vote

    Voting is more than a civic responsibility. It is a declaration of presence, power, and participation. The decisions made by elected officials touch nearly every aspect of our lives—from access to healthcare and medical research to community-based services, caregiver support, transportation, education, and employment. For people living with disabilities, however, participating in an election may…

  • MDA Ambassador Guest Blog: Technology as a Tool for Independence

    Kareem Azzazi is a 38-year-old content creator from Minnesota living with Duchenne Muscular Dystrophy. He uses eye-tracking technology to write, stream, play games, and create content online as TheSaturverse. Technology has always been more than a convenience for me. For some people, technology makes life faster or easier. For me, it often determines whether I…

  • Donnie Demers: The Man Behind the Music

    When looking at the list of accomplishments and accolades that musician and multi-platinum selling song-writer Donnie Demers achieved during his career, it is impossible not to be impressed by his talent and success – but what his family and loved ones remember most about the composer is his unwavering and genuine love for music and…

  • MDA’s Guide to the Air Carrier Access Act

    How the Air Carrier Access Act (ACAA) gives people with disabilities the right to air travel and protects people who fly with wheelchairs and scooters.

  • How to Find an Accessible Obstetrician-Gynecologist (OB/GYN)

    Questions about equipment, transfers, positioning, and telehealth can help women with neuromuscular diseases find accessible OB/GYN care that fits well.

  • Understanding Myotubular Myopathy (MTM)

    Neurologist Perry Shieh, MD, PhD, answers questions about myotubular myopathy, its symptoms, diagnosis, and the search for safer gene therapy.

  • Attorney Ed Barocas Lives with a Sense of Justice and a Sense of Humor

    Civil rights attorney and musician Ed Barocas shares how disability advocacy, creativity, and embracing mobility equipment shaped his success.

  • Progress Now: Enrolling Clinical Trial Updates

    Explore enrolling clinical trials for ALS, DMD, Friedreich ataxia, myasthenia gravis, myotonic dystrophy, and Pompe disease.

  • From Research to Reality: Meet 2 Researchers Driving Drug Development Progress

    MDA funding supports researchers at different career stages as they explore better gene therapies and possible treatments for neuromuscular diseases.

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

MUST-READ FEATURES

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How to Find an Accessible Obstetrician-Gynecologist (OB/GYN)

By Maggie Callahan | August 21, 2026
Illustration of a scientist in a mask examining a sample with a microscope amid DNA, molecules, and laboratory equipment.

Understanding Myotubular Myopathy (MTM)

By Michelle Jackson | August 21, 2026
Civil rights attorney Ed Barocas, seated in a wheelchair, poses with his family indoors.

Attorney Ed Barocas Lives with a Sense of Justice and a Sense of Humor

By Rebecca Hume | August 21, 2026
Illustration of lab equipment, including a microscope, test tubes, and beakers.

Progress Now: Enrolling Clinical Trial Updates

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Researcher Asuka Eguchi in a white lab coat smiles while holding a pipette at a laboratory workstation.

From Research to Reality: Meet 2 Researchers Driving Drug Development Progress

By Janet Celosia | August 21, 2026
Colorful overlapping silhouettes of people in conversation, with speech and thought bubbles.

Key Disability Rights Laws Shape Accessibility Across Daily Life

By Amy Bernstein | August 21, 2026
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QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

See All Episodes

Episode 64-Your Difference Is Your Superpower: A Conversation with Cerys Davage

August 4, 2026

In this episode of the Quest Podcast, we chat with Cerys Davage, a Welsh podcaster and content creator living with limb-girdle muscular dystrophy (LGMD), who has turned her diagnosis into a platform for connection and representation. Cerys opens up about growing up in a family that chose openness over silence, the moment in university when…

Episode 63- The People Behind the People: Family Caregiving, Policy, and the Power of Showing Up

May 21, 2026

In this episode of the Quest Podcast, we chat with Nicole Lucas, a devoted family caregiver and dental hygienist who stepped away from her career so that her daughter could pursue her dreams; Carlee Weber, a 24-year-old law student at the University of Pittsburgh living with spinal muscular atrophy (SMA) who has never let expectations…

Episode 62- From Roadmap to Emmy: Samuel and Dan Habib on Filmmaking, Family, and Disability

April 9, 2026

In this Quest Podcast episode, we chat with Emmy Award-winning filmmaker and disability advocate Samuel Habib and his father and longtime collaborator Dan Habib, the creative duo behind the extraordinary documentary The Ride Ahead. In the film, Samuel opens up about his personal journey into adulthood — navigating housing, employment, relationships, and higher education while…