In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

With so many valuable podcasts, blog articles, and magazine articles available to our audience, chances are that you may have missed one or two pieces of interesting content. Check out the summaries and links below.

In case you missed it… Quest Blogs:

MDA Kickstart: A New Hope for Ultra-Rare Neuromuscular Disease Treatments

We’re thrilled to share an exciting new initiative that brings hope to those affected by ultra-rare neuromuscular diseases. Introducing the MDA Kickstart program, a bold new venture designed to accelerate the development of gene therapies for conditions so rare that they often fall under the radar of traditional drug development efforts. Read more. 

Our Affordable Accessible Bathroom Renovation

Barbara Twardowski, a writer with Charcot-Marie-Tooth disease (CMT), shares what she learned from her own affordable accessible bathroom remodel experience and provides tips and tricks to others considering accessibility renovations. Read more.

In case you missed it… Quest Podcast:

Episode 44: Voting Rights and Accessibility

In this Quest Podcast episode, we chat with Shaun Hill, MDA’s Manager of Public Policy & Advocacy and Mark Fisher, MDA’s Director of Advocacy Engagement. They join us to share the most recent updates and information about accessible voting, your rights when it comes to accessible voting, and information about MDA’s Access the Vote program and advocacy efforts.  Please join us and make your vote count at https://mda.org/vote. Listen here.

In case you missed it…Quest Magazine 2024 Issue 3, Featured Content:

Your Vote Matters: Disability Advocates Can Help Change Legislation for the Better

Voters and advocates with disabilities have been making positive change for decades. It’s important that we continue to make our voices heard to influence legislation for the better. Learn about current issues and how you can advocate for change. Read more.