In Case You Missed It…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

With so many valuable podcasts, blog articles, and magazine articles available to our audience, chances are that you may have missed one or two pieces of interesting content. Check out the summaries and links below.

In case you missed it… Quest Blogs:

MDA Ambassador Guest Blog: How Finding Community Helped Me Face the Fear of Having My Son Tested for CMT

Kevin Crowley, who lives with Charcot-Marie-Tooth disease (CMT), shares how finding community and leaning on support helped him face the fear of having his son undergo genetic testing for CMT. He shares his journey and the process that led to his decision. Read more. 

How Expanded Access and Compassionate Use Broaden Access to Investigation Therapies

Expanded access (compassionate use) helps patients access promising treatments when no other options exist. Learn how this process works – and how it changed the lives of one family. Read more.

In case you missed it… Quest Podcast:

Episode 58: Wrapping Up 2025 with Lily & Ira

In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Lily S. and Ira Walker. Lily is a dedicated advocate finishing her first year as a National Ambassador. She shares her journey, why she believes it is important to advocate for yourself and others, and what she has learned along the way. As Ira wraps up his second year as a National Ambassador and prepares to start a career as a published author, he chats about how connecting with his community and sharing his story with others through MDA has been life-changing. These National Ambassadors join us to share their experiences, expertise, and advice. Listen here.

In case you missed it…Quest Magazine 2025, Issue 4:

The Newest Issue of Quest Magazine is Here

The final issue of Quest Magazine for 2025 is here! Read up on financial education, budgeting tips, self-care for caregivers, gene therapy, MDA’s umbrella of care, personal stories about careers with a disability, understanding spinal-bulbar muscular atrophy, Quest Media Photo Contest winners, and more. Read more.