In Case You Missed It…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

With so many valuable podcasts, blog articles, and magazine articles available to our audience, chances are that you may have missed one or two pieces of interesting content. Check out the summaries and links below.

In case you missed it… Quest Blogs:

Everything You Need to Know About Clinical Trials for Neuromuscular Disease

Clinical trials move research forward, putting people at the center of discovery. From understanding safety and risks to accessing cutting edge treatments, learn how clinical trials work and why participation matters.  Read more. 

Simply Stated: Understanding Idiopathic Inflammatory Myopathies 

The idiopathic inflammatory myopathies (IIMs) are a group of rare autoimmune muscle diseases that include dermatomyositis, polymyositis, immune-mediated necrotizing myopathy (IMNM), antisynthetase syndrome, and inclusion body myositis (IBM). Learn about subtypes and symptoms, causes, current management, the evolving research and treatment landscape, and MDA’s work to further cutting-edge IIM research. Read more.

Family’s Are Waiting

A recent 60 Minutes segment examining the cost of gene therapy put a national spotlight on a question families living with rare disease confront every day: how can lifesaving medical breakthroughs exist if they remain out of reach for the people who need them? Sharon Hesterlee, PhD, President & CEO at MDA, shares how the way we address affordability and access now will shape the future of medicine. Read more. 

A Shift in Perspective: Person-First Language and Identity-First Language

The conversation around disability language is evolving and is being led by disabled voices like MDA Ambassadors Santana Gums and Payton Rule. They share why choice, respect, and lived experience matter most. Read more.