Expedia’s New Initiative is Transforming Accessibility for Short-Term Rentals

Expedia Group is not only opening the door, but widening the doorway, when it comes to accessible short-term rentals (STR) and vacation homes. As one of the largest travel companies in the world, hosting travel metasearch engines like Vrbo, Tavelocity, and more, the initiative to increase accessible options has the potential to transform accessibility in…

Quest Podcast: Unpacking Disability Pride- Voices from the MDA Community

In this Quest Podcast episode, we chat with MDA Ambassadors, Payton Rule, Fred Graves and former MDA National Ambassador Amy Shinneman. Payton shares a journey of transformation from self-doubt to pride, emphasizing how important community has been in helping her feel seen and valued.  While Fred offers a perspective rooted in resilience and advocacy, discussing…

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. With so many valuable…

Understanding MDA Advocacy’s Education Policy Efforts

At MDA, we believe that students in the neuromuscular community deserve to pursue their own education, career goals, and dreams just like their peers do. To do this, we know that we must equip students and their families with the tools to advocate for their needs in the classroom. There are several developments related to…

Simpler, Safer Transfers: Helpful Tips and Useful Equipment

With limited mobility, transferring from one spot to another is a daily challenge. Find tips and equipment for easy, safe transfers.

Quest Podcast: Service Dogs, Inc. – Paws with a Purpose

In this Quest Podcast episode, we chat with a former attorney who left her law practice to devote her time to building Service Dogs, Inc. Sheri Soltes founded Service Dogs, Inc. in 1988 on the concept of using dogs rescued from animal shelters. Under her guidance, Service Dogs, Inc. has led the industry in combining…

Clinical Research Alert: Phase 3 Study of RGX-202 in Boys with DMD

REGENXBIO Inc. is enrolling boys living with Duchenne muscular dystrophy (DMD) to participate in a phase 3 clinical trial to evaluate the safety, tolerability and efficacy of the investigational gene therapy RGX-202 to treat DMD. RGX-202 is designed to produce a novel microdystrophin protein to replace the missing dystrophin protein in the muscles of males…

Simply Stated: MG Therapeutic Landscape

Myasthenia gravis (MG) is a chronic neuromuscular disease characterized by muscle weakness that worsens after activity and improves after rest. Most people with MG experience one of two forms, ocular or generalized. In ocular MG, weakness is limited to the muscles that move the eyes and eyelids. In generalized MG (gMG), weakness may affect eye…

MDA Ambassadors Share Tips for Flying with Power Wheelchairs and Medical Equipment

Looking for tips for travel with a power wheelchair or medical equipment? Experienced travelers with disabilities share their airplane hacks.

MDA Ambassador Guest Blog: Finding Passion & Purpose in Art

Jennifer Lane is a wife and mother of three grown children and lives in Alabama. She is involved in church ministry and is an advocate and Ambassador for the MDA. She was diagnosed with LGMD 1C in 2022, after 13 years of searching for a diagnosis. Jennifer is a published artist, loves going to concerts,…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities. 

QUEST PODCAST

The Quest podcast, proudly presented by the Muscular Dystrophy Association, is part of the Quest family of content. Hosted by Quest Editor-in-Chief, motivational speaker and writer Mindy Henderson.

Episode 55- Unpacking Disability Pride: Voices from the MDA Community

In this Quest Podcast episode, we chat with MDA Ambassadors, Payton Rule, Fred Graves and former MDA National Ambassador Amy Shinneman. Payton shares a journey of transformation from self-doubt to pride, emphasizing how important community has been in helping her feel seen and valued.  While Fred offers a perspective rooted in resilience and advocacy, discussing…

Episode 54- Service Dogs, Inc. – Paws with a Purpose

In this Quest Podcast episode, we chat with a former attorney who left her law practice to devote her time to building Service Dogs, Inc. Sheri Soltes founded Service Dogs, Inc. in 1988 on the concept of using dogs rescued from animal shelters. Under her guidance, Service Dogs, Inc. has led the industry in combining…

Episode 53- Invisible People: Making the Rare Seen

In this Quest Podcast episode, we chat with a former pharmacist turned singer/songwriter who lives with Generalized Myasthenia Gravis. Dania Quill has devoted her time and expertise to create inclusive spaces for those with disabilities and deliver advice, inspire action, and make us feel closer through song while sharing stories of resilience and positivity.  While…