Finding a Diagnosis

Digital background depicting innovative technologies in genetic research
Blog Post

Simply Stated: Research Updates in Pompe Disease

By Sujatha Gurunathan | March 29, 2023
Side view of two happy women in wheelchairs talking and smiling outdoors. Background of green summer park.
Blog Post

MDA Peer Connections Program Creates Lasting Friendships

By Sara, Care Specialist | March 24, 2023
3d rendered image shown neuromuscular junction, where nerve end splits into several neural end plates on different muscle cells.
Blog Post

Simply Stated: Research Updates in Facioscapulohumeral Muscular Dystrophy (FSHD)

By Sujatha Gurunathan | February 28, 2023
Headshot of Leah Zelaya, a teenage girl with long brown hair wearing a blue turtle neck against a tan background
Blog Post

MDA National Ambassador Blog-Letters From Leah: What I’d Like Parents to Know About Being a Teenager with a Disability

By Leah Z. | February 24, 2023
Closeup of an unclothed infant lying on its side on a white blanket while an adult hand holds a stethoscope to its chest.
Featured Article

Q&A: Understanding Congenital Muscular Dystrophy

By MDA Staff | February 16, 2023
Illustration of a medical office, with a man in a white lab coat standing holding a clipboard, a man sitting in a wheelchair, and a woman in scrubs pushing the wheelchair.
Featured Article

MDA Care Centers: A National Network of Expert Care

By MDA Staff | February 16, 2023
Blog Post

Access to Neuromuscular Disease Care for Black People and People of Color

By Myrna Traylor | February 1, 2023
Scientist examines DNA models on a lab screen
Blog Post

Simply Stated: Updates in Oculopharyngeal Muscular Dystrophy (OPMD)

By Sujatha Gurunathan | January 26, 2023
Headshot of Aimee Zehner, a white woman with curly, light brown hair wearing cat-eye, rhinestone-tipped glasses.
Blog Post

Navigating the Long Journey to a Rare Disease Diagnosis

By Shaila Wunderlich | January 18, 2023
3 separate human skeletal clipart images are set in blue: a hand, with a red target indicating wrist contractures; a bent elbow, with a red target indicating elbow contractures; and a foot, with a red target indicating ankle contractures.
Featured Article

Q&A: Understanding Bethlem Myopathy

By MDA Staff | November 18, 2022