In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

With so many valuable podcasts, blog articles, and magazine articles available to our audience, chances are that you may have missed one or two pieces of interesting content. Check out the summaries and links below.

In case you missed it… Quest Blogs:

Preparing for College Life with a Disability

The prospect of heading off to college can feel stressful for any high school student, but there are additional factors for those with neuromuscular diseases and disabilities. Fortunately, your healthcare team can play a significant role in helping to ease concerns — for students and their families — while fostering a sense of independence. Here are some ways young adults and their families can prepare for what’s next from a health perspective. Read more.

My Gene Therapy Journey: The Graves Family

The Graves Family shares their journey receiving gene therapy for their daughter’s SMA when she was diagnosed as a newborn. Read more. 

In case you missed it… Quest Podcast:

Episode 39: Behind the Scenes – A Look at the Science and Research for New Treatments

In this Quest Podcast episode, we chat with geneticist, Dr. Jeffrey Chamberlain and the Chief Research Officer of the Muscular Dystrophy Association, Dr. Sharon Hesterlee.  Both have devoted their time and expertise to create and move forward research and treatments for neuromuscular diseases. These specialists join us to share their experiences, expertise, and advice. Listen here.

In case you missed it…Quest Magazine:

2024 Quest Magazine Issue 3 is here!

Quest Magazine Issue 3 features articles about gene therapy, avoiding online scams, tips for living well as a senior, how disability advocates are changing legislation, adapting to employment challenges, understanding myositis, MDA Ambassador life hacks, and more. Read more.