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In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

With so many valuable podcasts, blog articles, and magazine articles available to our audience, chances are that you may have missed one or two pieces of interesting content. Check out the summaries and links below.

 

In case you missed it… Quest Blogs:

 

MDA’s Origin Story: A Grassroots Legacy

As we celebrate MDA’s 75th anniversary, you may be asking, how did this all begin? It’s no surprise that MDA started as a grassroots organization. From the earliest days, our mission has been shaped by the stories and needs of people living with neuromuscular diseases and their families. Take a look back at the impact and innovation over the years. Read more. 

 

Hoyer Lifts and Beyond: Choosing the Right Lift for You

Lifts make transfers safer for everyone. But with so many types of lifts available, how do you choose the right one? These tips and considerations  can help you to find the lift that works best for you. Read more.

 

In case you missed it… Quest Podcast:

 

Episode 49: Navigating Romance

In this episode of Quest Podcast, we chat with three of our MDA Ambassadors. Nora is a passionate animal advocate and lives with Selenon (SEPN1)-related myopathy (RM). Justin is a disability advocate and an Operations Manager and lives with Limb-girdle Muscular Dystrophy and K.L. is an entrepreneur, poker professional, and influencer living with Spinal Muscular Atrophy. They have each devoted themselves to finding their path in life and advocating and teaching others about their respective neuromuscular disease. While offering unique perspectives on dating and marriage, they join us to share their experiences, expertise and advice when it comes to navigating romance and finding love. Listen here. 

 

In case you missed it…Quest Magazine:

 

Quest Magazine 2025 Issue 1

Quest Issue 1 is here! Read up on how stem cell innovations are driving advances in muscle regeneration, why you should practice shared healthcare decision making, innovations in GNE myopathy research, how people with disabilities balance benefits and employment, ways to support siblings of kids with neuromuscular disease, accessibility options on your smartphone, how volunteers make a big impact on the MDA community, and more


Next Steps and Useful Resources

Disclaimer: No content on this site should ever be used as a substitute for direct medical advice from your doctor or other qualified clinician.