Parenting

Front view of medical diverse team pushing emergency stretcher bed in the corridor at hospital
Blog Post

Expert Advice for Preparing for Medical Emergencies with NMD

By Rebecca Hume | April 24, 2026
A street sign that reads Happiness is Camping
Blog Post

How MDA Summer Camp Influenced the Direction of My Life

By Rebecca Hume | April 17, 2026
John Crowly stands at a podium in the spotlight in a dark auditorium. Signage on the podium and behind him says MDA Clinical and Scientific Conference.
Blog Post

Pompe Disease and the Real Story Behind Dr. Stonehill, John Crowley, and ‘Extraordinary Measures’

By Updated by Amy Bernstein | April 13, 2026
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Blog Post

In Case You Missed It…

By MDA Staff | December 8, 2025
Blog Post

Life with Lily: Advice for Parents of Children with Neuromuscular Disease

By Lily S | November 20, 2025
Action shot of Jake Saxton pumping his left fist with a triumphant look on his face and his mouth open in a yell. He is in a power wheelchair wearing a hockey jersey and knee and shin guards, with a power hockey stick resting in his right hand.
Featured Article

Meet Our 2025 MDA Quest Photo Contest Winners

By MDA Staff | November 14, 2025
Blog Post

MDA Ambassador Guest Blog: How Finding Community Helped Me Face the Fear of Having My Son Tested for CMT

By Kevin Crowley | November 12, 2025
Team of professional doctors and nurses examining newborn baby at the hospital. Healthcare and medicine concept.
Blog Post

MDA Advocacy Team Reports Updates in Newborn Screening Legislation

By Paul Melmeyer | September 4, 2025
Portrait of little boy sitting in wheelchair at the library
Blog Post

Head Back-to-School in Style with Adaptive Fashion

By Rebecca Hume | September 3, 2025
Blog Post

Life with Lily: The Right to Access My Education Fully

By Lily S | August 21, 2025