Parenting

Savannah Jordan and her partner, embracing in a sunlit field, both have their hands lovingly around her pregnant belly.
Featured Article

Considerations and Tips to Plan for Pregnancy with a Neuromuscular Disease

By Maggie Callahan | May 26, 2026
Matt Curcio and his family pose outdoors by a fence, with the children holding sunflowers and Matt seated on a mobility scooter.
Featured Article

Foster Care, Adoption, and Surrogacy Considerations for Parents with Neuromuscular Diseases

By Rene Ryan | May 26, 2026
Bright color-block illustration of objects and people related to education and disabilities, including a lightbulb, pencil, eye, puzzle piece, and girl in a wheelchair.
Featured Article

Guide to Navigating IEPs and 504 Plans for Kids with Neuromuscular Diseases

By Joanna Buoniconti | May 26, 2026
Blog Post

Quest Podcast: The People Behind the People: Family Caregiving, Policy, and the Power of Showing Up

By MDA Staff | May 21, 2026
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Blog Post

In Case You Missed It…

By MDA Staff | May 8, 2026
A family of five stands on a beach for a photo
Blog Post

The Joy (and Lessons) of Motherhood from MDA Ambassadors

By Rebecca Hume | May 7, 2026
Front view of medical diverse team pushing emergency stretcher bed in the corridor at hospital
Blog Post

Expert Advice for Preparing for Medical Emergencies with NMD

By Rebecca Hume | April 24, 2026
A street sign that reads Happiness is Camping
Blog Post

How MDA Summer Camp Influenced the Direction of My Life

By Rebecca Hume | April 17, 2026
John Crowly stands at a podium in the spotlight in a dark auditorium. Signage on the podium and behind him says MDA Clinical and Scientific Conference.
Blog Post

Pompe Disease and the Real Story Behind Dr. Stonehill, John Crowley, and ‘Extraordinary Measures’

By Amy Bernstein (Updated) | April 13, 2026
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Blog Post

In Case You Missed It…

By MDA Staff | December 8, 2025