In Case You Missed It…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

With so many valuable podcasts, blog articles, and magazine articles available to our audience, chances are that you may have missed one or two pieces of interesting content. Check out the summaries and links below.

In case you missed it… Quest Blogs:

Pompe Disease and the Real Story Behind Dr. Stonehill, John Crowley, and ‘Extraordinary Measures’

“Don’t hope for a miracle. Make one,” is the powerful tag line from “Extraordinary Measures,” a 2010 dramatic film starring Brendan Fraser, Harrison Ford, and Keri Russell. The film tells the story of real-life father and biotech entrepreneur, John Crowley, and his pursuit to help advance Pompe treatments and save his children’s lives. Read more.

Simply Stated: Introduction to CIAO1-Related Neuromuscular Disorder

CIAO1-related neuromuscular disorder is an inherited condition caused by variants in the CIAO1 gene. It primarily affects muscle function, though many affected people also experience problems with the nervous system. Learn about the cause, symptoms, diagnosis, current management, and evolving research and treatment landscape. Read more. 

In case you missed it… Quest Podcast:

Episode 62 – From Roadmap to Emmy: Samuel and Dan Habib on Filmmaking, Family, and Disability

In this Quest Podcast episode, we chat with Emmy Award-winning filmmaker and disability advocate Samuel Habib and his father and longtime collaborator Dan Habib, the creative duo behind the extraordinary documentary The Ride Ahead. In the film, Samuel opens up about his personal journey into adulthood — navigating housing, employment, relationships, and higher education while living with a rare neurodevelopmental condition — and how connecting with the disability community helped him find confidence, purpose, and his own powerful voice. Dan reflects on two decades of disability filmmaking and what it meant to finally put a person with disability in the director’s chair. Together, they share the honest, often humorous, and deeply moving story behind the making of the film, the mentors who shaped it, and why authentic representation in storytelling matters now more than ever. Samuel and Dan offer their experiences, expertise, and heartfelt advice on self-advocacy, finding community, and what it really looks like to live a full and meaningful life with a disability. Listen here.

In case you missed it…Quest Product Guide:

New Quest Product Guide is Here

This guide is designed to help you find tried-and-true products that make life more independent, stylish, and fun. All of the products that you see here were chosen by MDA Ambassadors, who shared exactly how each product helps them in their daily lives. This is a resource we have curated because we LOVE you and because we LOVE things that make your life just a little easier. Shop now.