In Case You Missed It…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

With so many valuable podcasts, blog articles, and magazine articles available to our audience, chances are that you may have missed one or two pieces of interesting content. Check out the summaries and links below.

In case you missed it… Quest Product Guide:

New Quest Media Summer Product Guide

These thoughtfully selected products are used and recommended by MDA Ambassadors to make travel, summertime outings, home accessibility, and day-to-day activities more independent and adaptive. View Product Guide here. 

In case you missed it…Quest Magazine:

Quest Magazine 2026 Issue 2 is Here

Check out the newest issues of Quest Magazine to read up on accessible dental care, family planning, drug approvals & clinical trial updates, cardiac health, personal stories, and more. Read more.

In case you missed it… Quest Blogs:

Simply Stated: Introduction to Morimoto-Ryu-Malicdan Neuromuscular Syndrome (RFC4 deficiency)

MRMNS is an inherited condition caused by variants in the RFC4 gene and is classified as a congenital myopathy. It primarily affects skeletal muscles and in some cases the nervous system. Learn more about symptoms, diagnosis, current management, and evolving research. Read more. 

In case you missed it… Quest Podcast:

Episode 63 – The People Behind the People: Family Caregiving, Policy, and the Power of Showing Up

In this episode of the Quest Podcast, we chat with Nicole Lucas, a devoted family caregiver and dental hygienist who stepped away from her career so that her daughter could pursue her dreams; Carlee Weber, a 24-year-old law student at the University of Pittsburgh living with spinal muscular atrophy (SMA) who has never let expectations define the size of her ambitions; and Shannon Wood, MDA’s Director of Disability Policy, who brings both professional expertise and personal experience as a family caregiver to the conversation. Nicole opens up about the sacrifices, logistical challenges, and profound love that have shaped decades of caregiving — including making the difficult decision to leave her job when the system failed to provide adequate support during Carlee’s first year of law school. Carlee shares what it means to build an independent life with the right support behind you, from navigating caregiver shortages and agency failures to setting her sights on a career in disability law. And Shannon pulls back the curtain on the current policy landscape, including MDA’s caregiving campaign and the legislation that could finally bring meaningful relief to the millions of Americans quietly holding everything together. Together, they share their experiences, expertise, and heartfelt perspectives on partnership, advocacy, sacrifice, and why supporting family caregivers isn’t just a family issue — it’s a societal one. Listen here.