News

Read the latest news about issues affecting the neuromuscular disease community.

Blog Post

A Year Built Together: Reflections on 2025 and the Road Ahead

By Sharon Hesterlee, PhD, President & CEO, Muscular Dystrophy Association | December 22, 2025
3D rendering of a biotinylated antibody linked to BODIPY molecules or bright green. This technique allows to visualize and track the antibody for targeted applications in medical research.
Blog Post

Simply Stated: Understanding Idiopathic Inflammatory Myopathies

By Sujatha Gurunathan | December 22, 2025
Blog Post

Clinical Research Alert: Phase 1 Study of Gene Therapy in Individuals with Myotonic Dystrophy Type 1

By MDA Staff | December 19, 2025
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Reflecting on 2025’s Advocacy Accomplishments

By Mark Fisher | December 18, 2025
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Clinical Research Alert: Two Phase 4 Studies of Risdiplam in Pediatric SMA Patients Following Gene Therapy

By MDA Staff | December 17, 2025
Blog Post

Clinical Research Alert: Phase 1/2 Study of DYNE-101 in Individuals with Myotonic Dystrophy Type 1

By MDA Staff | December 17, 2025
Colorful figurines on the dark surface. Diversity and inclusion concept.
Blog Post

A Shift in Perspective: Person-First Language and Identity-First Language

By Rebecca Hume | December 17, 2025
wooden blocks spell out the word content with word bubbles above that say news and stories and photos and blog
Blog Post

In Case You Missed It…

By MDA Staff | December 8, 2025
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MDA Updates on Air Travel Advocacy

By Shannon Wood | December 3, 2025
Blog Post

A Government Shutdown Couldn’t Stop Advocates During MDA on the Hill 2025

By Mark Fisher | November 25, 2025