News

Read the latest news about issues affecting the neuromuscular disease community.

2023 Clinical and Scientific Conference
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MDA Kickstart: A New Hope for Ultra-Rare Neuromuscular Disease Treatments

By Sharon Hesterlee, Ph.D. | September 9, 2024
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MDA Ambassador Guest Blog: My Experience at the 14th Annual Disability Justice Seminar

By Sumukha Terakanambi | August 14, 2024
Illustration of a woman in a wheelchair facing the US Capitol building across a plaza lined with American flags.
Featured Article

Your Vote Matters: Disability Advocates Can Help Change Legislation for the Better

By Steve Wright | August 13, 2024
2024 Clinical and Scientific Conference - Mon 03042024
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2025 MDA Clinical & Scientific Conference Registration is Open

By MDA Staff | August 2, 2024
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MDA Guest Ambassador Blog: Cycling Towards a Cure, One Mile at a Time (Charcot-Marie-Tooth disease)

By Lilly F. | July 22, 2024
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Episode 43- Disrupting the Narrative

By MDA Staff | July 8, 2024
Image of the United States Capitol Building
Blog Post

Federal Appropriations: MDA and Neuromuscular Disease Community Priorities

By Jori Houck | June 13, 2024
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Blog Post

In Case You Missed It…

By MDA Staff | June 8, 2024
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Featured Article

How to Get One-on-One Support From MDA

By MDA Staff | May 9, 2024
A disabled child in a wheelchair being cared for by a voluntary care worker
Blog Post

Help! Solutions Needed for Finding In-home Caregivers

By Myrna Traylor | May 3, 2024