Personal Stories

Read personal stories about people living and thriving with neuromuscular diseases.

Blog Post

MDA Ambassador Guest Blog: How Making an Impact Renewed My Purpose After FSHD Diagnosis

By Ranae Beeker | June 13, 2025
A dad in a wheelchair wearing glasses smiles down at the young child he is holding in his lap
Blog Post

The Joys (and Lessons) of Fatherhood from MDA Ambassadors

By Rebecca Hume | June 10, 2025
Blog Post

Quest Podcast: Invisible People: Making the Rare Seen

By MDA Staff | June 6, 2025
Courtney B. Cap and Gown Senior Photo
Blog Post

MDA Ambassador Guest Blog: How My MG Journey Has Shaped Who I Am Today

By Courtney B. | June 3, 2025
Rachel and her dad on her wedding day
Blog Post

My Father’s Journey with ALS

By Rachel Barber | May 30, 2025
Matt Curcio sitting in a mobility scooter on the deck of a cruise ship looking over the water at the sunset.
Featured Article

Advocating for Himself Helps Matt Curcio Serve Others

By Rebecca Hume | May 23, 2025
Close up of actor Danny Kurtzman at a screening of the movie Good Bad Things. He is looking straight at the camera, wearing a black cap and black shirt and jacket in front of a backdrop printed with the movie title.
Featured Article

How We’re Changing the Narrative on Disability in Hollywood

By Danny Kurtzman | May 23, 2025
Lily S. and Ralph Norman
Blog Post

Life with Lily #2: Advocating for Disability Rights

By Lily S | May 20, 2025
Greg working with veteran service organizations
Blog Post

MDA Ambassador Guest Blog: A Life of Service

By Greg Dodson | May 13, 2025
Blog Post

How to Maximize Your College Experience by Advocating for Accommodations and Accessibility

By Jaylin Hsu | May 9, 2025