Personal Stories

Read personal stories about people living and thriving with neuromuscular diseases.

Rachel and her dad on her wedding day
Blog Post

My Father’s Journey with ALS

By Rachel Barber | May 30, 2025
Matt Curcio sitting in a mobility scooter on the deck of a cruise ship looking over the water at the sunset.
Featured Article

Advocating for Himself Helps Matt Curcio Serve Others

By Rebecca Hume | May 23, 2025
Close up of actor Danny Kurtzman at a screening of the movie Good Bad Things. He is looking straight at the camera, wearing a black cap and black shirt and jacket in front of a backdrop printed with the movie title.
Featured Article

How We’re Changing the Narrative on Disability in Hollywood

By Danny Kurtzman | May 23, 2025
Lily S. and Ralph Norman
Blog Post

Life with Lily #2: Advocating for Disability Rights

By Lily S | May 20, 2025
Greg working with veteran service organizations
Blog Post

MDA Ambassador Guest Blog: A Life of Service

By Greg Dodson | May 13, 2025
Blog Post

How to Maximize Your College Experience by Advocating for Accommodations and Accessibility

By Jaylin Hsu | May 9, 2025
Blog Post

A Fire Fighter’s Lasting Impact on the Fight Against ALS: Bob McAlvey’s Life & Legacy

By Rebecca Hume | May 7, 2025
Tamara Blackwell and her family.
Blog Post

MDA Ambassador Guest Blog: Balancing Gracefully: A Mother’s Day Reflection from Ms. Wheelchair America

By Tamara Blackwell | May 5, 2025
A large crowd of MDA Summer Camp campers and volunteers pose in front of a fire truck with its ladder raised
Blog Post

Fire Fighters Go the Distance for MDA

By Rebecca Hume | May 2, 2025
My dog and I at a local park (Forest Park)
Blog Post

MDA Ambassador Guest Blog: What I’ve Learned as a Disability and Wellbeing Researcher

By Payton Rule | May 1, 2025