Episode 15: Power of ALS Registries
Dr. Paul Mehta
- Register with the ALS Registry: https://www.cdc.gov/als/
- Connect with the CDC: https://twitter.com/CDCEnvironment
Dr. Elisabeth Kilroy
Dr. Elisabeth Kilroy‘s passion for understanding the intricacy of the neuromuscular system and human movement was ignited after watching the progression of her father and brother’s muscular dystrophy. Dr. Kilroy earned her BS in Exercise Science with a minor in Neuroscience from College of Charleston in December 2014. She then completed her PhD in June 2020 in the lab of Dr. Clarissa Henry at University of Maine. Her graduate work focused on the role of inactivity versus electrical stimulation on disease progression in the zebrafish model for Duchenne muscular dystrophy. She then served as a post-doctoral scientist in the lab of Dr. Kevin Flanigan at Nationwide Children’s Hospital, where she focused on understanding dystrophin expression in the brain. Now, Dr. Kilroy is the Director of MOVR at the Muscular Dystrophy Association. MOVR is the neuroMuscular ObserVational Research Data Hub, which captures medical and genetic data from individuals with neuromuscular diseases.
- Instagram: @ekilroy44
- Twitter: @ekilroy44
- LinkedIn: https://www.linkedin.com/in/elisabeth-kilroy-50898976/
Mindy Henderson is the Editor-in-Chief of MDA’s Quest family of content and the host of this podcast. She was diagnosed with Spinal Muscular Atrophy, type 2 when she was 15 months old and has been a life-long partner to MDA. Mindy is also a motivational speaker and a writer, with her first book set to hit book stores in Summer of 2022.
Disclaimer: No content on this site should ever be used as a substitute for direct medical advice from your doctor or other qualified clinician.
Listen to this next
In this Quest Podcast episode, we chat with a renowned journalist, model and disability rights…
In this Quest Podcast episode, we chat with Mark Fisher, MDA’s Director of Advocacy Engagement…