Ambassadors

RiseFest, one of the largest Christian music festivals in the Midwest
Blog Post

MDA Ambassador Guest Blog: Lessons in Life and Fatherhood

By Rob Roozeboom | June 18, 2026
Blog Post

MDA Ambassador Guest Blog: Strong Enough to Carry Grief AND Gratitude with FSHD

By Skye Anderson | June 15, 2026
Young tourist female enjoying picturesque Norwegian wild lake in Telemark region, Norway. Traveling in Scandinavian countries concept image.
Blog Post

MDA Ambassador Guest Blog: A Myasthenia Gravis Voyage of Twists, Turns, and Discoveries

By Tina Vassar | June 3, 2026
Bright color-block illustration of objects and people related to education and disabilities, including a lightbulb, pencil, eye, puzzle piece, and girl in a wheelchair.
Featured Article

Guide to Navigating IEPs and 504 Plans for Kids with Neuromuscular Diseases

By Joanna Buoniconti | May 26, 2026
Her ALS Story Photoshoot with Rick Guidotti, founder Positive Exposure
Blog Post

MDA Ambassador Guest Blog: How to Find Community for Young People Living with Debilitating Diseases

By Gwen Petersen | May 20, 2026
Blog Post

MDA Ambassador Guest Blog: Embers of Resilience Through Depression

By Joshua Vinson | May 13, 2026
wooden blocks spell out the word content with word bubbles above that say news and stories and photos and blog
Blog Post

In Case You Missed It…

By MDA Staff | May 8, 2026
A family of five stands on a beach for a photo
Blog Post

The Joy (and Lessons) of Motherhood from MDA Ambassadors

By Rebecca Hume | May 7, 2026
Just me being me after moving here to NY
Blog Post

MDA Ambassador Guest Blog: ALS is Not the End of My Story

By Monica Torres | May 4, 2026
Blog Post

MDA Ambassador Guest Blog: My Pompe Journey

By Kathryn Arvidson | April 10, 2026