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Headshot of Aimee Zehner, a white woman with curly, light brown hair wearing cat-eye, rhinestone-tipped glasses.
Blog Post

Navigating the Long Journey to a Rare Disease Diagnosis

By Shaila Wunderlich | January 18, 2023
A boy with light skin and dark hair and swim goggles perched on his forehead looks at the camera with a large, open-mouthed smile and his hands up in the air. He wears a blue long-sleeve rash guard and life vest and sits in a beach wheelchair with large, yellow inflated wheels designed to roll on sand.
Blog Post

International Day of Persons with Disabilities: The State of Neuromuscular Disease Advocacy Around the World

By Larry Luxner | December 1, 2022
illustration of medical team and patients looking at large chart of medical statistics and numbers
Blog Post

What You Should Know About Target Health Numbers

By Cheryl Alkon | November 25, 2022
Close-up of four white Christmas ball ornaments and a red cranberry branch resting on a bed of snow.
Featured Article

Holiday Cheer: Smart Tips to Manage the Stress of the Season

By Barbara and Jim Twardowski, RN | November 18, 2022
Alt Text Illustration of a woman holding a magnifying glass in front of a computer screen with beakers, a microscope, and DNA double helix, suggesting a web search for research content.
Featured Article

3 Steps to Find Reliable Information on Neuromuscular Disease Research

By Amy Bernstein | November 18, 2022
Colorful illustration of people on a blue background with speech bubbles above their heads.
Featured Article

How to Speak Up for Your Healthcare Needs in Hospitals and Doctors’ Offices

By Donna Albrecht | November 18, 2022
Illustration of five square tiles representing natural disasters: tornado, draught, earthquake, thunderstorm, and tsunami wave.
Featured Article

The Best Way to Prepare People With Disabilities and Their Communities for Natural Disasters

By Myrna Traylor | November 18, 2022
Blog Post

How Protective and Advocacy Organizations Help People with Disabilities

By Susan Johnston Taylor | November 10, 2022
Blog Post

Will New Federal Funding Make Public Transit More Accessible?

By Susan Johnston Taylor | October 29, 2022
Hygiene products, dry shampoo, cotton buds, toothbrushes poking out of bag on a beige background.
Blog Post

Tips for Better Hygiene With a Disability — And Why It Matters

By Elizabeth Millard | October 2, 2022