In Case You Missed It…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

With so many valuable podcasts, blog articles, and magazine articles available to our audience, chances are that you may have missed one or two pieces of interesting content. Check out the summaries and links below.

In case you missed it… Quest Blogs:

MDA’s Guide to the Air Carrier Access Act

The ACAA is a federal law enforced by the US Department of Transportation (DOT). In addition to establishing a right to air travel, the ACAA requires airlines to provide specific types of assistance and accommodations to passengers with disabilities. Learn who it protects, key parts of the act, and how to assert your rights. Read more. 

New Myotubular Myopathy Clinical Trial May Lead to Safer Gene Therapy

Myotubular myopathy researchers hope that a gene therapy with a new adeno-associated virus (AAV) will deliver disease-modifying benefits without endangering the liver.  Read more.

In case you missed it… Quest Podcast:

Episode 64: Your Difference is Your Superpower: A Conversation with Cerys Davage

In this episode of the Quest Podcast, we chat with Cerys Davage, a Welsh podcaster and content creator living with limb-girdle muscular dystrophy (LGMD), who has turned her diagnosis into a platform for connection and representation. Cerys opens up about growing up in a family that chose openness over silence, the moment in university when she stopped hiding her disability, and how that shift led her to launch her podcast, Unbalanced with Cerys Davage. She speaks candidly about the ongoing need for greater disability representation, the promising research on the horizon for her specific condition, LGMD2i/R9, and what it has taken to build an independent life — from adaptive driving to the everyday problem-solving that rarely gets seen behind the scenes. Cerys shares her experiences, expertise, and heartfelt perspective on identity, independence, and why she believes your differences are your superpower. Listen here.

In case you missed it…Quest Magazine 2026 Issue 3, Featured Content:

Key Disability Rights Laws Shape Accessibility Across Daily Life

Today, when we think of the legal underpinnings of accessibility in the United States, we generally think of the ADA. In fact, many laws work together to make our world more accessible and protect the rights of people living with disabilities. When they work as intended, these laws go beyond disability rights, benefiting everyone by enhancing convenience and safety, advancing innovation, and strengthening communities through diversity. Read more.