Posts

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Clinical Research Alert: Clinical Study for Adults with Late-Onset Pompe Disease (LOPD)

By MDA Staff | April 15, 2026
John Crowly stands at a podium in the spotlight in a dark auditorium. Signage on the podium and behind him says MDA Clinical and Scientific Conference.
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Pompe Disease and the Real Story Behind Dr. Stonehill, John Crowley, and ‘Extraordinary Measures’

By Updated by Amy Bernstein | April 13, 2026
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MDA Ambassador Guest Blog: My Pompe Journey

By Kathryn Arvidson | April 10, 2026
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Quest Podcast: From Roadmap to Emmy: Samuel and Dan Habib on Filmmaking, Family, and Disability

By MDA Staff | April 9, 2026
wooden blocks spell out the word content with word bubbles above that say news and stories and photos and blog
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In Case You Missed It…

By MDA Staff | April 8, 2026
Happy volunteer in wheelchair taking notes while working at donation center.
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Ambassador Guest Blog: How I Use My Voice by Volunteering – and Why You Should Too

By K.L. Cleeton | April 6, 2026
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MDA Ambassador Guest Blog: Rurally Complicated

By Jenna Ryerson | April 2, 2026
Adrian Krainer, PhD
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Letter from the Editor: How New Higher-Dose Regimen for Spinraza Brings More Hope

By Mindy Henderson | March 30, 2026
Demyelination of neuron, the damage of the neuron myelin sheath seen in demyelinating diseases, such as multiple sclerosis and other demyelinating myelinoclastic and leukodystrophic diseases, computer illustration.
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Simply Stated: Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)

By Sujatha Gurunathan | March 30, 2026
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Life with Lily: Why an Expert Specialist is Crucial for Your Care

By Lily Sander | March 27, 2026