Posts

Blog Post

Clinical Research Alert: Phase 3 Study of Pridopidine in Individuals with ALS

By MDA Staff | May 1, 2026
Closeup of Fiona Cauley sitting in her wheelchair
Blog Post

Comedian Fiona Cauley Shares Humor While Raising Disability Awareness

By Barbara and Jim Twardowski, RN | May 1, 2026
Blog Post

The Why Behind MDA’s Campaign to Support Family Caregivers

By Shannon Wood and Mark Fisher | April 30, 2026
Ribonucleic acid strands consisting of nucleotides important for protein bio-synthesis - 3d illustration
Blog Post

Simply Stated: Introduction to CIAO1-Related Neuromuscular Disorder

By MDA Staff | April 28, 2026
Front view of medical diverse team pushing emergency stretcher bed in the corridor at hospital
Blog Post

Expert Advice for Preparing for Medical Emergencies with NMD

By Rebecca Hume | April 24, 2026
Blog Post

Clinical Research Alert: Phase 3 Study of Omaveloxolone in Children and Teenagers with Friedreich Ataxia (FA)

By MDA Staff | April 21, 2026
Pharmaceutical research and medical concepts
Blog Post

Beyond Approval: Why Drug Development Doesn’t End at FDA Sign-Off

By Megan Kramer-Salvitti | April 20, 2026
A street sign that reads Happiness is Camping
Blog Post

How MDA Summer Camp Influenced the Direction of My Life

By Rebecca Hume | April 17, 2026
Blog Post

Clinical Research Alert: Clinical Study for Adults with Late-Onset Pompe Disease (LOPD)

By MDA Staff | April 15, 2026
John Crowly stands at a podium in the spotlight in a dark auditorium. Signage on the podium and behind him says MDA Clinical and Scientific Conference.
Blog Post

Pompe Disease and the Real Story Behind Dr. Stonehill, John Crowley, and ‘Extraordinary Measures’

By Amy Bernstein (Updated) | April 13, 2026