Emery-Dreifuss Muscular Dystrophy (EDMD)

Emery-Dreifuss muscular dystrophy is a genetic, degenerative disease that primarily affects the muscles in the shoulders, upper arms, and lower legs.

Blood sample with requisition form for creatine kinase (CK) test
Blog Post

Understanding Creatine Kinase Levels and Testing

By Chris Anselmo | November 22, 2024
3d helix chromosome or Dna structure, technology science background. 3d render illustration
Blog Post

Simply Stated: Revisiting Muscular Dystrophy

By Sujatha Gurunathan | September 3, 2024
A group of people from neuromuscular advocacy organizations gathered at the 2024 MDA Clinical & Scientific Conference.
Featured Article

Understanding Titinopathies

By Myrna Traylor | May 9, 2024
Disabled man on wheelchair with his dog on a trip in nature.
Blog Post

Coping With a Difficult Diagnosis: Your Emotions Are Normal

By Claire Sykes | April 23, 2024
Abhiram Srivatsa, DO, a doctor who lives with Emery-Dreifuss muscular dystrophy, poses in his graduation cap and gown.
Featured Article

How a Doctor Turns His Disability Into a Strength

By Rebecca Hume | November 17, 2023
Closeup of Jodi O’Donnell-Ames, a white woman with long black hair, sitting with her arms around her knees, wearing a purple Hope Loves Company sweatshirt.
Featured Article

Talking About a Diagnosis Is a Personal Decision

By Cheryl Alkon | May 18, 2023
Motor neuron connecting to muscle fiber, 3D illustration. A neuromuscular junction allows the motor neuron to transmit a signal to the muscle causing contraction. It is affected by toxins and diseases
Blog Post

Simply Stated: Research Updates in Emery-Dreifuss Muscular Dystrophy (EDMD)

By Sujatha Gurunathan | April 28, 2023
Blog Post

Simply Stated: Elevated Enzymes

By Sharon Hesterlee, Evrim Atas, and Angela Lek | April 6, 2023
illustration of medical team and patients looking at large chart of medical statistics and numbers
Blog Post

What You Should Know About Target Health Numbers

By Cheryl Alkon | November 25, 2022
Alt Text Illustration of a woman holding a magnifying glass in front of a computer screen with beakers, a microscope, and DNA double helix, suggesting a web search for research content.
Featured Article

3 Steps to Find Reliable Information on Neuromuscular Disease Research

By Amy Bernstein | November 18, 2022