Nemaline Myopathy

Nemaline myopathy, also called rod body disease, is an inherited disease that causes problems with muscle tone and contraction.

A group of people from neuromuscular advocacy organizations gathered at the 2024 MDA Clinical & Scientific Conference.
Featured Article

Understanding Titinopathies

By Myrna Traylor | May 9, 2024
CK Creatine Kinase illustration with doctors
Blog Post

Simply Stated: The Creatine Kinase Test

By Sharon Hesterlee, Ph.D. | March 7, 2024
Glass slides in the laboratory. Hand in blue glove holding glass organ samples. Histological examination. The microscope in the background blurred. Pathologist at work.
Blog Post

Simply Stated: Muscle Biopsy

By MDA Staff | February 23, 2024
Doctor Using Stethascope on a Baby
Blog Post

Understanding Hypotonia or Low Muscle Tone in Infants

By Myrna Traylor | August 15, 2023
A female doctor or nurse concentrates while reviewing at a patient's test results.
Blog Post

The Value of Natural History Studies for Neuromuscular Disease

By Sujatha Gurunathan | May 4, 2023
Illustration of DNA
Blog Post

Simply Stated: What Is Neuromuscular Disease?

By Amy Bernstein | June 8, 2022
Featured Article

MDA Summer Camp Primes Kids for Independence

By Cheryl Alkon | May 13, 2022
Scientific conference speakers
Featured Article

A Successful In-Person Conference

By MDA Staff | May 13, 2022