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In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

With so many valuable podcasts, blog articles, and magazine articles available to our audience, chances are that you may have missed one or two pieces of interesting content. Check out the summaries and links below.


In case you missed it… Quest Blogs:


FDA’s Approval of Duvyzat (givinostat) Offers New Hope to People Living with Duchenne Muscular Dystrophy

On March 21, the  U.S. Food and Drug Administration gave final approval to Duvyzat (givinostat), a new treatment for children and adolescents living with Duchenne muscular dystrophy (DMD). Read more. 


Advancements in Accessible Air Travel: A Recap of Recent Developments

As the MDA Advocacy Team continues their work to support accessible air travel, we have two exciting efforts to share – one from Congress and one from the U.S. Department of Transportation (DOT). If both efforts become a reality, it will result in the most transformative improvements to air travel in several decades, and the Advocacy Team will need your voices to ensure that happens! Read more.


In case you missed it… Quest Podcast:


Episode 39: Behind the Scenes: A Look at the Science and Research for New Treatments

In this Quest Podcast episode, we chat with geneticist, Dr. Jeffrey Chamberlain and the Chief Research Officer of the Muscular Dystrophy Association, Dr. Sharon Hesterlee.  Both have devoted their time and expertise to create and move forward research and treatments for neuromuscular diseases.  Their goal is to create successful treatments and eventually a cure for those effect by neuromuscular diseases. These specialists join us to share their experiences, expertise, and advice. Listen here.


In case you missed it…Quest Magazine:


What is the Drug Development Pipeline?

Right now, thousands of potentially beneficial therapies for neuromuscular diseases are being researched and tested. Here’s what that means for you and why MDA calls it “the pipeline of promise.” Read more.


Next Steps and Useful Resources

Disclaimer: No content on this site should ever be used as a substitute for direct medical advice from your doctor or other qualified clinician.