In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

With so many valuable podcasts, blog articles, and magazine articles available to our audience, chances are that you may have missed one or two pieces of interesting content. Check out the summaries and links below.

In case you missed it… Quest Blogs:

Essential Gear for Traveling with a Disability

Travel should be exciting, not stressful. However, when you have a disability, packing the right mobility equipment and adaptive travel gear can mean the difference between a smooth adventure and unexpected challenges. From mobility aids to adaptive equipment, experienced travelers living with neuromuscular disease provide expert tips on essential gear for smooth travels with a disability. Read more. 

Simply Stated: Updates in Pompe Disease and Other Glycogen Storage Diseases

Glycogen storage diseases (GSDs) are a group of rare inherited conditions that occur when the body is not able to use or store glycogen properly. Learn more about the causes, types, symptoms, current management, and evolving treatment landscape for glycogen storage diseases. Read more.

In case you missed it… Quest Podcast:

Episode 50: PJ’s Protocol: A Lifesaving Procedure Fueled by Love

In this episode of Quest Podcast, we chat with three pillars of the Duchenne muscular dystrophy community who are here with us on the 10^th anniversary of PJ’s protocol. First, we have Brian Nicholoff whose son’s untimely passing was the catalyst for the creation of PJ’s protocol. Next is Amy Aikens whose son’s life was saved by PJ’s protocol. And finally, we have  Dr. Jerry Mendell, a legend in the Duchenne muscular dystrophy scientific community. We are so grateful to them for joining us to share their experiences, expertise, and advice. Listen here.

In case you missed it…Quest Magazine 2025 Issue 1, Featured Content:

Ready to Work: How People with Disabilities Balance Benefits and Employment

People with disabilities face tough choices between the benefits they need and the job opportunities they deserve. Fixing this requires changing outdated policies. Learn how individuals in the community are balancing benefits and employment as they share their experiences and advice. Read more.