wooden blocks spell out the word content with word bubbles above that say news and stories and photos and blog

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and members of the neuromuscular disease community about topics that matter to them and to the larger community of individuals with disabilities.

With so many valuable podcasts, blog articles, and magazine articles available to our audience, chances are that you may have missed one or two pieces of interesting content. Check out the summaries and links below.


In case you missed it… Quest Blogs:


6 Questions to Ask Your Doctor to Get a Diagnosis

With a rare disease, it can take a long time to get a diagnosis. We asked a neurologist and a member of the neuromuscular disease community to share their experiences and advice on the most important questions to ask when you’re seeking a diagnosis. Read more.

What Makes You Uncomfortable About Advocacy

For MDA’s Advocacy team, one of the most important responsibilities that we have is to ensure that members of the neuromuscular disease community who want an advocacy role feel comfortable using their voices to advocate for the issues that are the most important. The team shares answers to three of the most commonly asked questions about advocacy. Read more. 


In case you missed it… Quest Podcast:


Episode 35: Bridging the Gap Between Intention, Action, and Community Inclusion


In this Quest Podcast episode, we chat with the Director of Marketing and Communications at Idealist.org, President for New York Women in Communications (NYWICI) and host of the NYWICI WomenHeard Changemakers podcast.  Georgia Galanoudis had devoted her career to deliver advice, inspire action, and make us feel closer together while sharing stories of resilience and positivity. She joins us to share her experiences, expertise, and advice. Listen here.


In case you missed it…Quest Magazine:


2023 Quest Magazine Issue 4 is here!

Quest Magazine Issue 4 features articles about how genetic testing can help current and aspiring parents, the implications of genetic testing on insurance, what you need to know about COVID-19 and neuromuscular disease, how to have the best holiday season yet, and more. Read full issue here.


Next Steps and Useful Resources

Disclaimer: No content on this site should ever be used as a substitute for direct medical advice from your doctor or other qualified clinician.