Advocacy

Through advocacy, we make the MDA community’s voice heard and promote the interests of kids and adults living with neuromuscular diseases.

Blog Post

10 Facts About FSHD — and a Reason to Smile

By Tana Zwart | June 20, 2019
Blog Post

Congress is Considering a Law to Strengthen Newborn Screening: Help MDA Promote its Passage

By Brittany Hernandez | June 4, 2019
Blog Post

Support ALS Patients: Tell Congress to Pass the ALS Disability Insurance Act Today

By Brittany Hernandez | May 22, 2019
Blog Post

Wisconsin Sen. Tammy Baldwin Introduces Air Carrier Access Amendments Act

By Brittany Hernandez | March 12, 2019
Blog Post

Arkansas to Screen Babies for SMA

By MDA Staff | February 7, 2019
Blog Post

MDA Awards Venture Philanthropy Grant to AcuraStem to Develop Treatment for ALS

By Jeanene Swanson | January 15, 2019
Blog Post

Newborn Screening for DMD and BMD: MDA Needs Your Help

By MDA Staff | January 15, 2019
Woman doctor using tablet computer in hospital
Blog Post

National ALS Registry Now Open

By Miriam Davidson | October 19, 2010
Featured Article

504 Plans What Parents Should Know

By MDA Staff | March 31, 2009