Archives

From major wins to improve air travel for people living with disabilities to ensuring the neuromuscular community had all the resources needed to vote in this year’s election, 2024 was…

Paul Melmeyer, MDA’s Executive Vice President, Public Policy & Advocacy The 2025 MDA Clinical & Scientific Conference will be held March 16-19, 2025, at the Hilton Anatole in Dallas, Texas.…

Adults and children living with neuromuscular disease can experience medical trauma, but there are ways to cope.

Sorayda Rivera is a 37-year-old, first-generation Mexican American woman from Texas living with spinal muscular atrophy (SMA) type 3. Diagnosed at age three, Sorayda has defied expectations, building a life…

Ally Pack-Adair is 21 years old. She lives in Arizona and was diagnosed with a mitochondrial disease when she was a few weeks old. Ally enjoys arts and crafts, reading,…

A new outlook of acceptance helped Scott Conger find a career path best suited for his needs living with RYR1 myopathy.

Tips for staying safe in the extreme winter weather months living with a neuromuscular disease.

Experts and community members offer 10 ways to help ease holiday loneliness.

The Thanksgiving season serves as a reminder to focus on gratitude and appreciation, but practicing gratitude habits year-round has serious benefits to your well-being. Intentionally prioritizing time and creating space…

Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disorder that causes muscle weakness, disability, and eventually death, often within three to five years from when the symptoms first appear. In ALS,…